My daughter Alexis is 2 years old and on June 17th 2019 she was diagnosed with Nephrotic Syndrome. Since then she started on a steroid called prednisone which worked at first but then she become steroid resistant after frequent relapses and 28days of no response. She then had a kidney biopsy which showed she’s on her way of Nephrotic syndrome FSGS. Which means she will go onto needing dialysis and kidney transplant. She started a new medication Tacrolimus which so far has had no effect either and nowbeen in relapse since the 6th September which she has spent that time in hospital. Which means daily albumin infusions to try and help reduce the swelling along side the help of diuretics. This means she has several cannulas a week which leaves her traumatised as they find it hard to get a good vein and can take up to 3 doctors and a hour a time cannulating her. We would love some help in raising money so we can try and find a cure for this horrible condition, equipment to help make cannulating and taking bloods easier such as vein finders not only for alexis but for many children that will benefit from this. Every little bit of help will be massively appreciated by our family and all those families out there in desperate hope for a cure. Thankyou.
- shanade Mcclelland
- Ellie Appleby
- Jon Heath
- Anne-Marie Morris
Burton-on-Trent, West Midlands, United Kingdom