Levi Cameron Lucas

**UPDATE*** MAY 2020 LEVIS MUMMYS WORDS So today we’ve not had the best of days, probably the most second hardest day of our lives, the first being D day! Levi’s consultant arranged a meeting with myself to discuss treatment plans due to his BMA results showing 30% Leukemia. After being in remission for a while we got told the news no cancer kids, mum or dad want to hear. Mine and rosses boy relapsed after coming so far and being on round 4 out of 5 rounds of treatment (round 5 being maintenance) we heard the devastating news, and we couldn’t be more heart Brocken if we tried As of next week levi will start a new round of intense chemotherapy called “Blima”. Next week levi will start this treatment next week and is ongoing for 4 weeks, he will then have a 2 week break but whether that means we can come home or not I do not know. After Levi’s 2 weeks break he will then go back into blima for 4 weeks again. As “simple” as this sounds it comes with a lot of side effects, the side effects being; neurological problems where he will have daily reviews to prevent this, his fertility rate will be no more which obviously means he will not be able to have children when he is older, seizures and shakes and development issues. To help with his development he will have hormones injected to help him start puberty and any development in the future. After Blima Levi’s consultant is sharing Levi’s case with other oncology consultants across the nation so they know what’s best and what the next step will be, the two options being; Car T cells or a bone marrow transplant. If one doesn’t work then he will have the other option to try and clear the cancer. Both, me and ross will be tested for Levi’s bone marrow transplant, I was tested today. Levi has already been put on the list as this could be a long process. Many of you have said that you would be a donor if you are a match but unfortunately he system doesn’t work like that, but please know that we really appreciate it when you say it. After being told that Levi’s survival rate was 98% when being critical in PICU I put myself in the worst position and asked them this time round, I know it would be different due to the relapse but I didn’t expect him to say below 20% even though the number is so alarming we have such high hopes that he will pull through this and fight with all the strength he has! He’s come such a long way for him to feel the need to give up and me and ross couldn’t be any porous we if we tried! As you all know levi is a smiley happy baby, and he’s kicking cancers but his way, even though we’d been told he had relapsed it didn’t seem possible with the massive grin he had on his face! We are so proud of you son, even though your journey has now extended we will still make it out the other end, as a family! We’re fighting with you to kid, your not on your own! We love you unconditionally and have been well and truly blessed with such a hero! So please, stay strong! You’ve come to far to give up now, your not alone! #levisfight DEC 2019 This is my beautiful nephew Levi Cameron Lucas 7 weeks old to my brother Ross and Jordyn. He has been diagnosed with Leukemia and currently having Chemo. My brother and Girlfriend are in hospital accomodation and have nothing but them themselves. We are asking for help to make this horrendous journey that little bit easier to not have to worry about finances. If you can please help please do. We shall keep you updated on Levis journey Thank you everyone for your very kind donations to help Levi and his mum and dad at a very difficult time. We appreciate each and every1 of you. Please keep sharing. Xx


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Roxanne Lucas 
Watton, East of England, United Kingdom
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