<div>“This disorder will rob him of all the milestones he gains in his first year of life by the time he turns 2 and will ultimately take his life, unless we do something about it”
</div>
<div>Thank you for your interest! We the friends of Pashai family are hosting a fundraiser to help them get funds to support their two sons, Mohammad and Sufyan, with Metachromatic Leukodystrophy (MLD).
</div>
<div>The Pashais found that their sweet son, Mohammad, had MLD when he was failing to walk. After genetic testing of the rest of the family, they found that their other son, 4-month old Sufyan, also has MLD. Metachromatic Leukodystrophy (MLD) is a highly progressive and rare genetic disorder that is fatal read more at <a href="https://www.curemld.com" target="_blank" rel="noreferrer noopener"><a href="https://www.curemld.com/." target="_blank" class="" rel="nofollow noopener noreferrer">https://www.curemld.com/.</a></a>
</div>
<div>The diagnosis of Mohammad came too late, he was too far progressed for any treatments to help. He has already lost the ability to walk, stand, move, speak, and he struggles frequently with respiratory distress, often being hospitalized for respiratory failure.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/77553853_1704829789546907_r.jpeg" width="100%" />
<div><br />
</div>
<div>Because Sufyan was caught before symptom onset, he is eligible for the life-saving gene therapy treatment.
</div>
<div>Doctors are optimistic that they can help Sufyan with this intervention, saving his life if we can act quickly.
</div>
<div>Without proper treatment, Sufyan will progress and lose abilities just like his brother. But with your help, we can save Sufyan’s life.
</div>
<div>The Pashais will have to quit their job in order to take care of both of their children, and they will be traveling back and forth to Minnesota for multiple hospital visits during their son’s treatment.
</div>
<div>It is a parent’s worst nightmare for their child to be diagnosed with a fatal disease. And the thought of losing TWO children to the same fatal disease is just unbearable. We need your help to support them during this time of need as this family helped our troops and put their lives in danger.
</div>
<div>Please donate any amount you can, to help lessen this family’s loss.
</div>
<div><br />
</div>
<div>Read more about the family at:
</div>
<div><a href="https://www.statnews.com/2024/01/09/libmeldy-orchard-gene-therapy-afghan-refugee-texas-medicaid" target="_blank" rel="noreferrer noopener"><a href="https://www.statnews.com/2024/01/09/libmeldy-orchard-gene-therapy-afghan-refugee-texas-medicaid/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.statnews.com/2024/01/09/libmeldy-orchard-gene-therapy-afghan-refugee-texas-medicaid/</a></a>.
</div>

Lauriel Earley

Anonymous

mary c starzyk

Anuradha Codaty

Owais Khan

Kay Dougherty

Mallory Bissett

Jennifer J Indeliclae

Elizabeth Mellor

Courtney Rice

Your Help Can Save A Life! The Clock Is Ticking

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

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comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

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p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

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charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

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Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Your Help Can Save A Life! The Clock Is Ticking

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