Lets get Declan Camping!
Donation protected
Hi Everyone! We are looking for some help! As you may know I work at ArrKann RV and I have been friends with Lindsay Lord since high school (she said I wasn't allowed to say how long it has been since we graduated but it starts with a 2 and ends with a 0)! If you know Lindsay you will know she has three great kids and one of them is her hilarious little warrior Declan! I will put a little bit about Declan's health challenges below. Declan really wants to go camping and we at ArrKann worked with Make-a-Wish to get him a tent trailer but we are realizing now that he needs an actual travel trailer to make camping a bit easier for him (see below for details). If you can help out, we would really appreciate it! Lindsay didn't want me to fundraise for her but I think we can make it so there is no cost to her to upgrade from the tent trailer to a travel trailer (their family has been through enough). ArrKann RV is contributing towards the trailer, and if we hit our goal of $5000, I will kick in the remaining $2500! Thanks for you time! Anything over our goal will go to helping Lindsay pay for campgrounds and fuel for their trips! Here is a little bit more about Declan.
Diagnosed at 10.5 months with astrocytoma spinal cord tumors, and having relapsed twice, Declan has had two major spinal cord surgeries, and high dose radiation and has had 14 major surgeries and over 60 procedures. He has spent his entire 11 years of life in and out of the hospital (over 800 days spent in the hospital). Declan has had multiple other surgeries, including a mitrofanoff, cecostomy button, muscle lengthening, and finger amputation. He is considered a paraplegic. It hasn’t been an easy road, but he continues to do it with a smile and brave face.
His greatest love (other than sledgehockey) is camping. He was graciously given a tent trailer so he could escape away and do what he loves. He is absolutely ecstatic about his gift, as is his family. They were able to try it out and unfortunately discovered with all of his needs the tent trailer is just not going to work for Declan. Without getting into too much detail, Declan requires alot of bathroom care and privacy for 1.5 hours every morning, as well as help throughout the day with his toileting needs. He also requires an a/c, as he has horners syndrome, a condition in which prevents his body from cooling itself down and can result in seizures should he overheat. Also the width of the tent trailer door isn’t quite wide enough to fit his wheel chair inside whereas with a larger travel trailer it will fit!
It is for these reasons that we want to get Declan into a travel trailer, with air conditioning and a fully functions bathroom, to help him go camping and have fun!
Thanks for you time! LETS DO THIS!
Rob Minarchi
Diagnosed at 10.5 months with astrocytoma spinal cord tumors, and having relapsed twice, Declan has had two major spinal cord surgeries, and high dose radiation and has had 14 major surgeries and over 60 procedures. He has spent his entire 11 years of life in and out of the hospital (over 800 days spent in the hospital). Declan has had multiple other surgeries, including a mitrofanoff, cecostomy button, muscle lengthening, and finger amputation. He is considered a paraplegic. It hasn’t been an easy road, but he continues to do it with a smile and brave face.
His greatest love (other than sledgehockey) is camping. He was graciously given a tent trailer so he could escape away and do what he loves. He is absolutely ecstatic about his gift, as is his family. They were able to try it out and unfortunately discovered with all of his needs the tent trailer is just not going to work for Declan. Without getting into too much detail, Declan requires alot of bathroom care and privacy for 1.5 hours every morning, as well as help throughout the day with his toileting needs. He also requires an a/c, as he has horners syndrome, a condition in which prevents his body from cooling itself down and can result in seizures should he overheat. Also the width of the tent trailer door isn’t quite wide enough to fit his wheel chair inside whereas with a larger travel trailer it will fit!
It is for these reasons that we want to get Declan into a travel trailer, with air conditioning and a fully functions bathroom, to help him go camping and have fun!
Thanks for you time! LETS DO THIS!
Rob Minarchi
Organizer
Rob Minarchi
Organizer
Ardrossan, AB
