Layla-graces Fund

********UPDATE*************
After 3 years of wearing a custom made brace, Layla has shown significant improvement in her health over these past 3years. The kind donations has made a huge difference within our lives, especially in laylas. 
Layla  is now at 8 and she is now at an age her body is maturing and the growth of her body is developing at a rapid pace and unfortunately the brace she originally had is slowly becoming too small for her to wear.Layla is now still competing in the Northern County grand prix dance competition and the formation championships 2021and is now in need of a bigger brace which is still not available on the NHS. My family and I would like to thank all who has donated to this cause.Laylas confidence has increased and her smile lights up the room.*******
As some of you are aware, my beautiful 5year old daughter, Layla grace, has a deformation in her chest causing her sternum and rib cage to protrude outwards as she grows. This is commonly known as pigeon chest (medical term - pectus carinatum ) this condition will only get worse over time and effect Layla not only physically but emotionally and mentally, especially with physical activities in and out of school whilst having the potential to be bullied for looking 'different' Pectus carinatum effects 1 in 1,500 children, unfortunately Layla is one of those. There is treatment available for this deformation, which means Layla could have a specially custom made chest brace which would gently press against her sternum to help reshape her chest as she grows, this brace is more effective if provided at a young age such as Layla's. this brace would need to be worn for up to 20 hours a day for 6-12 months or even longer.Sadly this brace is not available on the NHS and the only treatment offered is surgery at the age of 16. This would involve Layla's bones to reshaped in to the normal position over a period of 8 hours surgery and 11 years of living with this condition. The NHS have lost a number of court cases trying to get the funding for these braces. I have set up this page to avoid putting my daughter through years of this deformation getting worse. I have watched Layla's chest worsen over the last 8 months, what could another 11 years waiting do to my little girl? This surgery and lengthy wait can be prevented with the chest brace that is available now but at the cost approx of £4,000. Despite trying everything I can to do the best by my daughter and raise the money needed, I am finding it impossible to achieve on my own. I am asking friends and family to kindly donate as much or as little as possible in the hope that my little girl can receive the treatment she deserves and needs. Everyone knows Layla is a happy, smiley and positive little lady with a passion and growing talent in dancing which she would love to progress in and reach her full potential without this deformation effecting  her future. I would like to thank everyone for their support so far and for any donations made to Layla's fund xx

Donations

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  • Kacey Jane 
    • £10 
    • 2 hrs
  • Nicola Standbridge 
    • £50 
    • 21 d
  • Nikki Jenkins 
    • £20 
    • 2 mos
  • Dale Evans 
    • £20 
    • 2 mos
  • Martyn Williams  
    • £10 
    • 2 mos
See all

Organizer

Charlotte Milsom 
Organizer
Llanharry, Wales, United Kingdom
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