Laura's Lifeline

Hi we are asking for help for our daughter Laura to enable her to get surgery to fix the top two bone in her neck which are unstable. Since the bed she was lent by the local NHS broke and threw her backwards (January 2018) she has steadily and surely got worse. Laura has Ehlers-Danlos Syndrome (EDS), a disorder of collagen, the main substance that keeps tissues strong in the body. She also has a disorder with myelin a substance that protects nerves so, in Laura, they get damaged easily. We have been advised by world experts that without this surgery she will die and as her sister, who also had EDS only died in September 2020, this is unbearable for us. Laura is now completely dependent on nutrition given into her veins with this and all her medication going through her Hickman line (a special access line which goes into a vein, it is tunneled under the skin and ends up by her heart). She also has a supra pubic catheter and a gastric tube (Mickey button). She has to lie flat all day because of the awful headaches and has been stuck in bed for almost three years now. She has had to put her OU degree on hold for now which was so hard for her, But Laura remains hopeful for the future if with your help we can raise the money for this surgery. If you can give anything thank you so much and if you aren’t able to would you please share her story.

Donations

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  • Hema Indrasamy 
    • £230 
    • 4 d
  • Paul Clarke 
    • £15 
    • 9 d
  • Elizabeth Scruton 
    • £20 
    • 13 d
  • Linda Adam 
    • £15 
    • 13 d
  • Maralynn Di cuffa 
    • £50 
    • 13 d
See all

Organizer

Laura Wareham 
Organizer
Slade Hooton, Yorkshire and the Humber, United Kingdom
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