Laura Frontal Temporal degeneration

At the age of 38 Laura has been diagnosed with a form of dementia,.  FTD . 

Only married for 5 years she'd only just really began her life,  now unsure how this disease will progress.

Laura's already suffering from Lupus ,  Ehlers-Danlos , APS and multiple complications, inc strokes, DVT's  and PE's. She desperately needs a break away  to help her feel a bit more positive.  This dreadful disease has resulted in her losing friends,  independence , career prospects , trapped by  symptoms of this disease,  

She has all of the symptoms of dementia  loss of memory, words are aphasiac and  she becomes confused  and frustrated  as people aren't able to understand what she's saying, due to her speech being affected. ( she uses words, which to her sound normal but to others it's meaningless )  she then becomes distressed when she realises that this is happening to her!  

I've never ever done this kind of thing before, but it's my daughter, I'll do anything for her.  She's my only child, albeit an adult one.  I'm bedridden myself,, with a Neurological condition,  so unable to help Laura physically, but - with the help of my carers ,  have been able to set up this campaign as a way to try to help her. 

This illness isn't much spoken about, but its effects are devastating.  She feels this this way too. So sad to hear her cry to feel so isolated and trapped by this condition.  She doesn't ask for much. She did fund raising herself in her youth, ( she was a talented flautist ) for juvenile arthritis, which is now ( in her case ) believed to have been they beginning of the autoimmune diseases she suffers from., but at the time not recognised.  No connection made.

  As her Mother it causes me much distress to see her suffer so much. We'd love to be able to fulfill her wish to go to the USA ( she'll be 40 in December 2017 )  with her husband, hire a RV to have a trip of a lifetime.  Any donation would be so gratefully received.  

Laura is kind, gentle , clever and funny, She'd have made a wonderful Mother, but the diseases she suffers from means she's unable to have children,  which adds to her sadness. However she tries to be positive, she's always kind to others, and  still tries to help  them if possible.  It'd  be wonderful if now this kindness  and willingness to help others was now  extended to her.

Thank you for reading this, even if you feel unable to contribute it'll help raise awareness  that forms of dementia aren't confined to the elderly in society.


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Francesca Ní Shúilleabháin 
Weston, East of England, United Kingdom
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