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<div>Hi I'm Rachel, I'm in my mid forties and I was recently diagnosed with Motor Neurone Disease.
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<div>After a misdiagnosis that left me believing I would recover from my symptoms (that started in 2017), I have finally received the correct diagnosis. However I am now left with an urgent need to make adaptations to my house and need equipment to assist my day to day activities and give me quality of life.
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<div>I live in my family home with my husband and two children and have had to give up working 18 months ago due to the severity of my symptoms.
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<div>With MND, messages from the motor neurones gradually stop reaching the muscles. This leads the muscles to weaken, stiffen and waste. MND can affect how you walk, talk, eat, drink and breathe. Some people also experience changes to their thinking and behaviour. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.
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<div>Motor neurone disease is a severely life-shortening condition for most people. Life expectancy for about half of those with the condition is three years from the start of symptoms. However, some people may live for up to 10 years, and in rarer circumstances even longer.
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<div>My physical abilities are already severely impaired and will continue to worsen. I am in a powered wheelchair and in order to participate in as normal a family life as possible I need major adaptations to my house including a wet room, permanent ramps to my front and back doors, lift and building work to allow my powered wheelchair access to the upstairs including my children's bedrooms as well as changing my doors to allow wheelchair access and changes to my garden so I can still enjoy it. I will also need lots of equipment such as a rise recliner chair, wash dry (Japanese) toilet, hoists and communication aids as my voice is failing.
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<div>If at all possible and funds allow, I'd also love one last family holiday to make memories to last before I'm too unwell for this to even be possible. I am determined to stay positive and to live my best life possible and this would really help to enable that.
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<div>Thank you for reading my story, I appreciate any help you can give, nothing is too small and if you cannot give then please share.
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<div>Rachel xx
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Gordon Wood

Anonymous

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Kerrie Taylor

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JULIE CHAMBERLAIN

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Yasmin Leonard

Lady with MND fundraising for urgent adaptations

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Lady with MND fundraising for urgent adaptations

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