Lachlans Journey with Joubert
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Courtney and William welcomed son Lachlan as their first son and brother to London on June 19. 2017. Lachlan was diagnosed with Joubert Syndrome shortly after birth and had a stay in the nicu due to his breathing issues. He is now 9 months old and is a beautifully sweet, happy, laid back baby.
William and Courtney noticed Lachlan having some more difficulty breathing recently and took him to Motts for evaluation. It was determined he was having obstructive apnea and therefore had surgery to hopefully help. Unfortunately, Lachlan is still admitted to the hospital and showing additional breathing difficulties even after the surgery. We are confident he will improve and begin to thrive but it’ll be a bit of a challenge. The medical team continues to search for a cause of Lachlans breathing troubles. At this time, he may require bipap at home. As you can imagine a power outage would prove disastrous so they’ll need a generator to support the breathing machine at home.
During this time at Motts, baby Lachlan has needed his mommy and daddy by his side supporting him and pushing for him. Courtney and William refuse to ask for help. As Courts sister, I hate to see them have any worries on their mind besides taking care of their kids. They’ve both missed work at relatively new jobs (no available paid time off right now) and William will be staying home the next few weeks until they can determine what Lachlans care needs will be.
If you’re able to help just a little bit, it will add up to them having funds available for gas and travel to U of M, time off work to be with Lachlan, and a backup power source for the breathing device.
Please follow Lachlans Journey with Joubert Facebook site for updates on our sweet boys accomplishments.
William and Courtney noticed Lachlan having some more difficulty breathing recently and took him to Motts for evaluation. It was determined he was having obstructive apnea and therefore had surgery to hopefully help. Unfortunately, Lachlan is still admitted to the hospital and showing additional breathing difficulties even after the surgery. We are confident he will improve and begin to thrive but it’ll be a bit of a challenge. The medical team continues to search for a cause of Lachlans breathing troubles. At this time, he may require bipap at home. As you can imagine a power outage would prove disastrous so they’ll need a generator to support the breathing machine at home.
During this time at Motts, baby Lachlan has needed his mommy and daddy by his side supporting him and pushing for him. Courtney and William refuse to ask for help. As Courts sister, I hate to see them have any worries on their mind besides taking care of their kids. They’ve both missed work at relatively new jobs (no available paid time off right now) and William will be staying home the next few weeks until they can determine what Lachlans care needs will be.
If you’re able to help just a little bit, it will add up to them having funds available for gas and travel to U of M, time off work to be with Lachlan, and a backup power source for the breathing device.
Please follow Lachlans Journey with Joubert Facebook site for updates on our sweet boys accomplishments.
Organizer and beneficiary
Abbigail Van Andel
Organizer
Jackson, MI
Courtney Nichols
Beneficiary
