Help Erin
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Erin is 12 years old and has autism. He also has a speech and language impairment this means not only does he have severe problems understanding language he also struggles significantly expressing himself. Erin has no friends, he finds social interaction difficult and any unfamiliar people or places can cause extreme anxiety. This is the reason that has not been in school since last May. He has been denied home tuition from dept of education and spends every day at home.
Erin also has epilepsy, he suffers from absence and tonic clonic seizures. Erin was also diagnosed with are rare chromosome disorder called XYY syndrome. We are still waiting to see a genetistis and have had to learn about the condition on line.
The neurologist referred Erin for an urgent MRI 2years ago in Dublin., we are still waiting .This has now become extremely important as Erin is experiencing pain in his bones.
During the summer I demanded new assessments in physiotherapy and occupational therapy , due to his regression ,the results were shocking ,Erin's condition has significantly deterioted. His scores are now in the profound area. Erin cannot dress or shower himself and due to his hyper mobile joints and poor muscle tone he can barely write. He now walks slightly bent over because his body tone is so weak he cannot hold his body upright and without intensive intervention this will continue to get worse.
He tires easily and when he can he walks on his knees as he finds it easier than walking. The problem becomes more serious as Erin is underweight ..no matter how much he eats he doesn't seem to gain weight and due to his chromosome disorder we should expect Erin to grow to a minimum of 6' 8 ( at 12 yrs old he is now 6feet ).
With his body tone so poor and services so appalling here ,after fighting continuously we have been allocated 6 sessions of therapy for the year. The future for Erin is looking bleaker and bleaker and hopes of Erin ever being independent are practically non exsistant unless intensive therapy, medical intervention and appropriate education can be given.
Erin also has epilepsy, he suffers from absence and tonic clonic seizures. Erin was also diagnosed with are rare chromosome disorder called XYY syndrome. We are still waiting to see a genetistis and have had to learn about the condition on line.
The neurologist referred Erin for an urgent MRI 2years ago in Dublin., we are still waiting .This has now become extremely important as Erin is experiencing pain in his bones.
During the summer I demanded new assessments in physiotherapy and occupational therapy , due to his regression ,the results were shocking ,Erin's condition has significantly deterioted. His scores are now in the profound area. Erin cannot dress or shower himself and due to his hyper mobile joints and poor muscle tone he can barely write. He now walks slightly bent over because his body tone is so weak he cannot hold his body upright and without intensive intervention this will continue to get worse.
He tires easily and when he can he walks on his knees as he finds it easier than walking. The problem becomes more serious as Erin is underweight ..no matter how much he eats he doesn't seem to gain weight and due to his chromosome disorder we should expect Erin to grow to a minimum of 6' 8 ( at 12 yrs old he is now 6feet ).
With his body tone so poor and services so appalling here ,after fighting continuously we have been allocated 6 sessions of therapy for the year. The future for Erin is looking bleaker and bleaker and hopes of Erin ever being independent are practically non exsistant unless intensive therapy, medical intervention and appropriate education can be given.
Organizer
Karen Laughton
Organizer
