Kyles race against time
Donation protected
My grandson kyle Morrison aged 8 got diagnosed with dipg in September 2019.
Kyle went to school as normal, happy he was dressed up as it was Roahl Dahl day. Later that afternoon his mum got a phone call from the school saying they thought kyle may have had a stroke and to come and have a look at him.
Myself and my daughter rushed him to the hospital where he underwent loads of tests.
An MRI came back with a brainstem tumor called DIPG and we were told this diagnosis meant he has roughly 12 months to live.
Kyle will eventually loose all functions because of this tumor. He won't be able to move, see, eat, breath or control his own body temperature.
We are now trying to raise as much money as possible as here in the UK there are currently no trials.
We are looking into any trials but
we have found a hospital in Seattle which are doing CAR T therapy but that comes at a huge price.
This has been made for any persons abroad who cannot pay other ways all I am asking is if everyone could donate all they can afford to help us reach our target for this potentially life saving treatment.
Kyle should have his whole life ahead of him and not have to worry about this dreadful disease which without some kind of treatment will mean a terrifying death which no child should suffer, therefore
if you can pleasehelp get our beautiful boy to America it would mean the world to us.
If anything happens to kyle before we can get on a trial all money raised will be going to a dipg research charity once kyles funeral money has been deducted and any expenses needed to support Kyle.
Kyle went to school as normal, happy he was dressed up as it was Roahl Dahl day. Later that afternoon his mum got a phone call from the school saying they thought kyle may have had a stroke and to come and have a look at him.
Myself and my daughter rushed him to the hospital where he underwent loads of tests.
An MRI came back with a brainstem tumor called DIPG and we were told this diagnosis meant he has roughly 12 months to live.
Kyle will eventually loose all functions because of this tumor. He won't be able to move, see, eat, breath or control his own body temperature.
We are now trying to raise as much money as possible as here in the UK there are currently no trials.
We are looking into any trials but
we have found a hospital in Seattle which are doing CAR T therapy but that comes at a huge price.
This has been made for any persons abroad who cannot pay other ways all I am asking is if everyone could donate all they can afford to help us reach our target for this potentially life saving treatment.
Kyle should have his whole life ahead of him and not have to worry about this dreadful disease which without some kind of treatment will mean a terrifying death which no child should suffer, therefore
if you can pleasehelp get our beautiful boy to America it would mean the world to us.
If anything happens to kyle before we can get on a trial all money raised will be going to a dipg research charity once kyles funeral money has been deducted and any expenses needed to support Kyle.
Organizer
Caroline Morrison
Organizer
England
