My name is Elizabeth Martinez, I am a wife to an amazing husband Mark, and a mother to three wonderful kids, Kylie 7, Kyle 4 and Karly 2.
On July 6th 2017, our family received the worst news imaginable, our son Kyle was diagnosed with Duchenne Muscular Dystrophy, a genetic disorder characterized by progressive muscle degeneration and weakness. Which is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Muscle weakness first starts affecting the muscle of the hips, pelvic area, thighs and shoulders, and later the skeletal muscle in the arms and legs. Eventually by early teens the heart and respiratory muscles will also be affected.
Since the day Kyle was born he has had to overcome so much. He suffered a fractured clavicle during birth which caused complications within it self but as the months went by we noticed he could not move very well and his head was becoming very flat. At 4 months of age and a few doctor appointments he was diagnosed with Plagiocephaly and Torticollis, which required him to use a molded helmet and begin physical therapy to address motor skills. Kyle is now 4 and still has to attend physical, speech and occupational therapy once a week.
Kyle’s needs will continue to grow over time, which will require more doctors visits and unfortunately we live in an area were doctors for his condition are not available. Traveling back and forth from Odessa, TX to Forth Worth, Tx and covering medical expensed have been overwhelming that as a family it has taken a financial toll on us, which is why we are kindly asking for your help. Not only are theses things that Kyle needs now but the list will only continue to grow over time.
Kyle will need:
· Handicap accessible housing
· Wheel Chair
· Wheel chair accessible van
As parents we want to be prepared for any situation that may occur, but also be able to still fulfill his life with a lot of joy and happiness.
As a family we are very thankful for taking the time to read our story and donating to this amazing little boy who only deserves the best and if donating is not an option we kindly ask to help us by keeping him in your prayers to keep him healthy and strong as long as possible and most importantly allowing him to just be a happy boy!
- Ruben Zamora
- Matt Golombowski
- Aandrea and Bill Hays
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