Living with Duchenne Muscular Dystrophy is tough, but it will not steal my joy. The toughest part about living with Duchenne is losing the ability to physically do certain things that you were able to do a month or even a week before. When you lose the ability to do something you realize real quick how much you take for granted and you develop a greater sense of appreciation for the things you are still able to do. Within a few years of diagnosis of Duchenne, a boy’s body deteriorates at an unrelenting pace. You go from being an active kid, being able to physically do the same activities that your friends can do, to being confined to a wheelchair and being fully reliant on someone to help you out with everyday tasks-like getting you dressed to feeding you. Losing the ability to walk was one of the toughest things I had to deal with. It all started on the first week of my seventh grade year when I fell down and couldn’t get up. This wasn’t the first time I fell at school before, but it was unlike any other fall before because it turned out this was the beginning of the end, in terms of not walking again. The next morning at school I tried to see if I could do it, but I just felt so weak that I had to be pushed around school in a wheelchair. As I was being pushed through the hallway to my class there were so many thoughts going through my head about how the other kids were going to react once the door was opened up. As it turns out, I had some of the best friends that anybody could ask for! They didn’t care about the fact that I was in a scooter, they just saw me for who I was as a person and helped me out with whatever I needed. We also continued to play basketball at recess and lunch I drove a scooter to get around at school for the seventh and eighth grade. In the summer prior to starting high school I started using a power wheelchair full-time. Duchenne runs its course on its own agenda, without warning something you could do one day is made more difficult the next. When you read about Duchenne Muscular Dystrophy it says at this such and such age this will happen. Even though they say most boys stop walking in their early teens, there is no handbook on how to handle tough situations like these. I didn’t ever really think as a young kid that someday I wouldn’t be able to walk ever again. It hit me hard and it took me awhile to adjust to life without being able to walk. You all know how middle school goes, you have so many other issues to sort through that adding this to my plate made life that much more complicated. As I came to grips with it all, I said if I could just maintain strength that I still had that I didn’t have to be able to walk to live a good, meaningful life. My disease has progressed in ways that has made life a little more challenging. I just try to live life day by day and to think about all the blessings in my life and all the abilities that I still have. <br /><br />It has been a little over 9  months and we have reached Kyle’s goal but  we would like to thank everyone who have donated or who have shared his fundraising page. None of this would of been possible without your tremendous support and generosity from you awesome people! Help improve the lives of individuals with Duchenne. Join me in our fight to Knockout Duchenne! #KODuchenne

Daniel Chafey

Georgia Lodge 

Teri Chamness

Anonymous

Greg/Carol/Jessica/Eric Kamin

Patty Loggins

Mark Atchison

Sandy Van Zwol Anderson

Gina and Fernando  Griffiths

Jake Schlichting 

Kyle Ornelas

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

be_supporter_comments_enabled_supported_funds

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Kyle Ornelas

Still $20,535 to go. Help us build momentum.