Kye Jamie Becker vander Kuijl was born on 21/10/2015 with a very rare condition called Hypoplastic left heart syndrome, essentially meaning the left side of his heart did not develop and never will. Our little man has endured phase 1 of his proceedures which included 3 open heart surgeries to enable the heart to function through just the right side as well as the repair of a collapsed lung.
What doctors found after various tests were a combination of other complications which makes him one of a kind and makes phase 2 of surgery (early Feb 2016) very technical and difficult but we know he will pull through.
His conditions are...
Hypoplastic left heart syndrome
Left atrial isomerism
Interupted inferior vena cava
Hypoplastic aortic arch
Following phase 2 of his heart surgeries. He will recover then go in to get the intestinal malrotation operated on. Essentially it's a condition where the small intestine is loose and can twist and is potentially fatal.
All going well, at 3-4 years of age he will have phase 3 of surgeries that will hopefully be his last and reality is he may need a heart transplant later in life.
Hopefully after his intestinal surgery we will be able to move back home to Torquay. We have been living at the Ronald McDonald house in Parkville next to the royal childrens hospital for almost four months. We are so incredibly lucky to have such an amazing facility there and have made some life long friends.
We were very reluctant to put a fund page together as we rarely ask for help and play Kye's situation down quite a bit, but after pulling our heads out of the sand and focussing on the fact this is for our little man and not us, it made our decision a lot easier.
Fortunatly many of Kye's medical costs have been taken care of however the money we raise will be used for monitors, medications and other essential extras our little man needs in order to have the best chance at a healthy life moving forward. He has had a really rough start to life but he is such an incredible and happy little fella.
Thankyou everyone for all your support and positivity. It helps us stay strong and we will keep fighting on.