As reluctant as I am to do this, our transition to disability for Kris's sudden and complex neuro-immune illness puts us in an awkward financial situation. For those of you new to the story, you can read it at How is Kris Price .
The hospital is charging us $17,000 for the rescue dose of IVIG in November. This is something we cannot afford on our disability income. I will continue to work with them to lower the cost, but am somewhat doubtful that they will do this, as so far they have resisted. But I will continue to do everything I can to see this go down. We don't want to pass on the cost to our friends when we know how much cheaper the insurance companies get these bills for. But, in being realistic, I need to ask for this amount.
Some exciting news -
For months, I was on the phone with Mayo Clinic in Arizona to get Kris an appointment with a world-renowned neurologist who specializes in auto-immune neuropathies like Kris's. We were on wait list after wait list. I called multiple times daily for months for cancellations - nothing. Just last week, we received the call that they have tentatively scheduled us for January 10th. We had no idea we even got selected. This is an important opportunity few people get, but it will be a large expense to us now that Kris's new restrictive insurance policy does not allow us to see doctors outside of New England. (If he was still back home being treated that insurance policy would’ve covered it.)Not to mention, flights, housing, and associated costs. I would really like to give him the best chance of recovery by seeing the best of the best, but would not like to further complicate our financial situation. This will be a very difficult physical toll on Kris to make this trip, now that we are so much further away (10 hours of connecting flights vs a 2 hour direct back home). So I would like to go into this with as little stress as possible.
The move to New England has cost us roughly $10,000 between lease breakages, the furniture and items we had to quickly give away to move so quickly, hotels, trailer rentals, fuel, and various fees.
Finally, any money left over that does not help us recoup these expenses will go toward the ongoing legal fees we will accrue for his long term disability process. This will be a years-long process and will be costly. (Let me tell you, unless you end up in this situation or see someone go through it, it's unbelievable how much the sick and disabled have to suffer just to get the help they need. )
Please only give if you are able to. If you would like to donate privately, please contact Violetta or Kris, as there are no longer any totally free fundraising tools on the internet.