Achalasia feeding tube food help

I'm at a loss at this point...

I'm calling in a favor ~
for you to share this awareness... My story.
I need the awareness through all of us to share and seek a solution. Quick.
Achalasia full blown stage 3
Esophageal Paralysis stage 3.
Post Failed botox, dilation, advanced balloon and hellermyotomy with fundoplication.
I live in Texas.
My age status and my childrens age screw me and I am one of many that fall into the black hole... says the State.
Reason I must be tied to the community hospital for Dallas county .... Parkland.
If I have to travel I will.
A colostomy and stomach port for feeding 3 fingers apart is not working well at all....
The pain is immeasurable...
There is not even the top and ONLY dr at Parkland to fix me....he did heller with fund; bought me 3 years.
They say they do not know how to fix the junction where its collapsed ???? Until then ~ the feeding peg port.
$600- 800 a month alone in can of tube feed.
No assistance from Parkland at all....
BUT they will on ALL ostomy supplies ??????
I need help.
Every Achalasia pt. does.
Of courses mine is complicated within it self.

Please share this
as this is how awareness starts...

With each one of us.
Just hit the share button tag some and you've done it!

Lets all make a difference.
Lets find a cure.
✌ & ❤ KL
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Organizer

Kay Lynn Joye 
Organizer
Grand Prairie, TX
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