If you’re not familiar with Konnie’s condition, please let them fill you in. "First, she suffers from a genetic connective tissue disorder called Ehlers Danlos Syndrome. Her collagen, which is the most abundant protein in the body and acts as a glue to hold the body and its organs together, is faulty. This means having very loose joints that spontaneously dislocate or subluxate because muscles and ligaments don't hold like they are supposed to; in Konnie’s case, her EDS causes spinal and craniocervical instability and bending and pinching of the brain stem and spinal cord. Her EDS has caused a co-morbid condition called Chiari Malformation, in which the brain slips out of the skull and into the spinal column and, if untreated, leads to death. Her first brain surgery in 2005 stopped the progression of her Chiari, but her symptoms have progressively returned. The good news is that we found an expert neurosurgeon who specializes in EDS and Chiari. Dr. Fraser Henderson is one of the only EDS specialists in the world and he has devoted his life to researching and caring for his patients."
Konnie has now had her surgery and is recovering in the hospital. This campaign will continue as long as is necessary to cover the full costs of this procedure. In most cases insurance would certainly have covered a major portion but the doctor no longer accepts any form of it as payment. It is my desire to see these people not being burdened by financial hardship due to a medical necessity. Thank you all once again for your ongoing support!
- Lani Nutt
- Patti Figueroa
- Larry Levy
- Jamey Hobbs
Organizer and beneficiary
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