In October 2010, on Koby's 2nd birthday Koby was admitted to hospital with an unknown virus. The virus was not able to be diagnosed and his Dr's were baffled and all tests came back negative.
Koby's immune system wasn't able to fight the virus and eventually turned on itself. The virus caused rapid brain swelling and Koby's brain became permanently scarred.
Doctors have been unable to fully diagnose Koby and has had a number of different diagnoses, tests and hospital visits which have not led to a formal diagnosis. Koby is currently diagnosed with Cerebral Palsy - Dystonic Quadriplegia, however it is not known whether this is the diagnosis that Koby will have into the future.
Koby's condition is so rare that his test results have been sent overseas to America and the UK, and to medical conventions around the world, and there are still no answers.
Koby is affected physically due to the damage caused by the unknown virus. Our son is now fully depedent on us for all of his daily needs. Koby is unable to communicate verbally with us, and requires a wheelchair for all mobility.
Our world has been turned upside down. Rick is working full time to support the family financially however I have now become Koby's full time carer due to his significant unpredictable physical and medical needs.
We currently have a four-wheel drive which I lift Koby in and out of every day for school and other activities. As Koby is getting older, he is getting heavier and more difficult to lift in and out of the car. Due to Koby's dystonic posturing, transfers are very difficult and are causing strain on not only my body but on Koby as well. As a result, we are limited in how often we can travel as a family with ease.
Koby loves to be outdoors with us and we love to go for walks, to the beach and to see our family who all live over an hour away from us. We strive to give Koby the opportunity to be all he can be and have all the experiences a 'normal' child would have at his age. However, with our current car this is becoming more difficult and we are forced to stay at home more often.
Our car is currently 10 years old and has done over 300,000km. Due to Koby's hospital visits, medical appointments and therapy appointments, we are unable to afford the cost of a modified vehicle that will be life changing for our family.
After 7 years of struggling to come to terms with Koby's diagnosis, and trying to do everything by ourselves, we have finally accepted that we must now ask for help. Koby now has a beautiful baby sister, Isla, so it is important that we have a vehicle that is safe for our whole family.
We appreciate any help you can provide
Rick, Brodie, Koby & Isla
- Daniel Wren
- Emily Nichols
- Jenni Dudgeon
- J Hobbs
- Rachel Torrisi
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