Daddy's Wheelchair Fund
Donation protected
Dear CBV addicts,
I thought long and hard about this before making this post, if you know me you know it’s hard for me to ask for help of any kind it’s my independent nature.
Most of you know that my Dad is wheelchair bound, in late 2004 my father was diagnosed with Inclusion Body Myositis, IBM for short. IBM is a very rare muscle disease, the cause of the disease is unclear, basically Inclusion Body Myositis is estimated to affect between 5 and 10 people in 1 million. Because of this, very little is known about the cause and there are no treatments.
My Father went from a strong independent hard working man 11 years ago, to being wheelchair bound and dealing with the challenges that entails. Never in any of our wildest dreams did we think this would be something we/he would have to deal with.
Living in a wheelchair and adjusting your daily life and routines while in a wheelchair has many challenges and trust me when I say being handicapped does not come cheap. Thankfully we have candleman and if my Daddy needs something between the two of them they think up a solution and then Matt finds a way to make it happen, such as ramps, showering, lifts, bathroom needs etc. Each and every day I worry about what the next day will bring but each day together we cross that bridge.
Currently my Dad’s electric wheelchair is on its last leg. It is leaning to one side, it won’t take a good charge, it’s rubbing him raw without going into great detail there, the bottom line is he needs a new one badly. Medicare will only help to pay for a new wheelchair every 5 years and they will only pay so much. The last chair he got 3.5 years ago was used because that is all he could afford; it’s the chair he is using now.
I found the perfect chair for my Dad but it’s expensive, $2499.00, it is used but it is everything he needs, it lifts up so he can get to a standing position because as of right now he can still transfer from his chair to the bed etc. but that’s as much as he can do so the lift is needed, lift chairs are very hard to find. It would also allow him to raise his feet up, being in a wheelchair does a number on your feet as well, his are purple and swollen all the time because of the lack of circulation.
This is the chair, it’s in Sugarland Texas about 4 hours from us so Melissa and I could literally go and pick it up. http://www.ebay.com/itm/2008-PERMOBIL-C300-WHEELCHAIR-FULLY-LOADED-POWER-LIFT-TILT-RECLINE-AND-LEGS-/181600204381?ssPageName=ADME:X:AAQ:US:1123.
And finally, I don’t want anyone to feel obligated in any way to participate, money is tight for everyone I totally understand that and I in no way want anyone to feel uncomfortable or obligated.
Thank you.
Victoria
I thought long and hard about this before making this post, if you know me you know it’s hard for me to ask for help of any kind it’s my independent nature.
Most of you know that my Dad is wheelchair bound, in late 2004 my father was diagnosed with Inclusion Body Myositis, IBM for short. IBM is a very rare muscle disease, the cause of the disease is unclear, basically Inclusion Body Myositis is estimated to affect between 5 and 10 people in 1 million. Because of this, very little is known about the cause and there are no treatments.
My Father went from a strong independent hard working man 11 years ago, to being wheelchair bound and dealing with the challenges that entails. Never in any of our wildest dreams did we think this would be something we/he would have to deal with.
Living in a wheelchair and adjusting your daily life and routines while in a wheelchair has many challenges and trust me when I say being handicapped does not come cheap. Thankfully we have candleman and if my Daddy needs something between the two of them they think up a solution and then Matt finds a way to make it happen, such as ramps, showering, lifts, bathroom needs etc. Each and every day I worry about what the next day will bring but each day together we cross that bridge.
Currently my Dad’s electric wheelchair is on its last leg. It is leaning to one side, it won’t take a good charge, it’s rubbing him raw without going into great detail there, the bottom line is he needs a new one badly. Medicare will only help to pay for a new wheelchair every 5 years and they will only pay so much. The last chair he got 3.5 years ago was used because that is all he could afford; it’s the chair he is using now.
I found the perfect chair for my Dad but it’s expensive, $2499.00, it is used but it is everything he needs, it lifts up so he can get to a standing position because as of right now he can still transfer from his chair to the bed etc. but that’s as much as he can do so the lift is needed, lift chairs are very hard to find. It would also allow him to raise his feet up, being in a wheelchair does a number on your feet as well, his are purple and swollen all the time because of the lack of circulation.
This is the chair, it’s in Sugarland Texas about 4 hours from us so Melissa and I could literally go and pick it up. http://www.ebay.com/itm/2008-PERMOBIL-C300-WHEELCHAIR-FULLY-LOADED-POWER-LIFT-TILT-RECLINE-AND-LEGS-/181600204381?ssPageName=ADME:X:AAQ:US:1123.
And finally, I don’t want anyone to feel obligated in any way to participate, money is tight for everyone I totally understand that and I in no way want anyone to feel uncomfortable or obligated.
Thank you.
Victoria
Organizer
Victoria Palmer Elliott
Organizer
Van, TX
