I am making this campaign because I have a rare and severe form of vasculitis called Wegener's Disease, also known as Wegener's Granulomatosis or Granulomatosis with Polyangiitis (GPA). The basic gist of it is, your immune system attacks your own body. The cause of it is unknown and there is no cure, but it can be put into remission. You can read more about it here: https://www.arthritis.org/about-arthritis/types/wegeners-granulomatosis/
For me it presented initially in September 2013 and was offically diagnosed in September 2014. Fortunately after the diagnosis and treatment it was put into remission. Recently however I had a flare which presented with severe nasal symptoms and moderate to severe pain throughout my body, and scans of my sinuses revealed some destruction of the cartilage and bones in my sinuses. As a result my doctor determined that the treatment should be a round of 4 Rituxan infusions (chemotherapy) 1 per week for 4 weeks and every 6 months for 2 years after that in order to try and put the disease back into remission. I completed the first round of 4 recently and the cost ended up being almost $3,000.
I'm asking for help for the cost of the infusions, the cost of the prescriptions and constant doctor visits and tests I have to undergo so that I am properly monitored, and for general financial help. Trying to deal with all this while working and going to college can be pretty overwhelming, so anything to help alleviate the burden of my finances would be so huge for me and greatly appreciated.
- Gera Clemenson
- Robin Burgis
- Jamie Brown
- Mike and Leann Anzalone
- Cassidy Weatherbee
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