Kenadee's Transveres Myelitis
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❤️ Kenadee's story on her diagnosis
For all that does not know yet. Kenadee and I have had quit the experience the last couple days. We were at holiday world on vacation. When Kenadee all of a sudden started not being able to feel her leg. She was dragging it, limping, crying it hurt so bad & even fell and scrapped her poor knee bc she couldn't hold her weight. (& didn't want my help)
Thursday night was a lot of tossing and turning. From not being able to get comfortable bc her leg hurt/numb. We woke up Friday morning and she couldn't put any pressure on it with out whaling in pain!
Friday morning I decided to take her to the ER in tell city, Indiana. We couldn't make it home with the pain level she was in. The hospital said it was growing pains or possibly a pinched sciatic nerve. After some meds, I than proceeded to take her home. Her dad wanted to see her and how she was feeling. So, I dropped her off at dads and he laid her on the couch. Couple hours later her step mom decided to change her clothes and Kenadee was having uncontrollable peeing, didn't even know she was peeing.
Red flag** Back to the hospital.. This time Sarah bush in mattoon. They there ran an MRI, cat scan, blood work, & a urine sample also, gave her dialotied for pain. They then, decided that they weren't equipped enough for the pediatric needs that Kenadee was going to have to take on & that they should transfer her. We then called Carle in champaign to talk about us coming over & they looked at her test results and realized they wouldn't be able to help her there either.
We than were transported to STL children's hospital. 48 hours later after no sleep later we have found out what we believe will be the diagnosis. Transverse myelitis. Which means an infection of the spinal cord fluid which results in swelling of the spinal cord. Which explains the pressure from not being able to feeling her legs.
We have now been admitted to a room. Doc says that we need to monitor her for the next 5days but, don't plan on going home on the 5th day. This may be along road ahead of us.
Who knows how long we will be here. & how many more times they are going to poke my baby. Or wake her up after she is finally sleeping good to run another test. But, we are on the best path to recovery with a great team of doctors & nurses here at STL Children's hospital.
This is not going to be easy alone and being a single mom with 2 bartending jobs. I'm going to need just a little help from some amazing souls.
Thank you to everyone that has sent me a messaged or commented prayers not one got unnoticed.
For all that does not know yet. Kenadee and I have had quit the experience the last couple days. We were at holiday world on vacation. When Kenadee all of a sudden started not being able to feel her leg. She was dragging it, limping, crying it hurt so bad & even fell and scrapped her poor knee bc she couldn't hold her weight. (& didn't want my help)
Thursday night was a lot of tossing and turning. From not being able to get comfortable bc her leg hurt/numb. We woke up Friday morning and she couldn't put any pressure on it with out whaling in pain!
Friday morning I decided to take her to the ER in tell city, Indiana. We couldn't make it home with the pain level she was in. The hospital said it was growing pains or possibly a pinched sciatic nerve. After some meds, I than proceeded to take her home. Her dad wanted to see her and how she was feeling. So, I dropped her off at dads and he laid her on the couch. Couple hours later her step mom decided to change her clothes and Kenadee was having uncontrollable peeing, didn't even know she was peeing.
Red flag** Back to the hospital.. This time Sarah bush in mattoon. They there ran an MRI, cat scan, blood work, & a urine sample also, gave her dialotied for pain. They then, decided that they weren't equipped enough for the pediatric needs that Kenadee was going to have to take on & that they should transfer her. We then called Carle in champaign to talk about us coming over & they looked at her test results and realized they wouldn't be able to help her there either.
We than were transported to STL children's hospital. 48 hours later after no sleep later we have found out what we believe will be the diagnosis. Transverse myelitis. Which means an infection of the spinal cord fluid which results in swelling of the spinal cord. Which explains the pressure from not being able to feeling her legs.
We have now been admitted to a room. Doc says that we need to monitor her for the next 5days but, don't plan on going home on the 5th day. This may be along road ahead of us.
Who knows how long we will be here. & how many more times they are going to poke my baby. Or wake her up after she is finally sleeping good to run another test. But, we are on the best path to recovery with a great team of doctors & nurses here at STL Children's hospital.
This is not going to be easy alone and being a single mom with 2 bartending jobs. I'm going to need just a little help from some amazing souls.
Thank you to everyone that has sent me a messaged or commented prayers not one got unnoticed.
Organizer
Kristian Bingaman
Organizer
Decatur, IL
