In memory of Khloë

In June 2014, at just 6 months old, sweet Khloë was diagnosed with Spinal Muscular Atrophy (Type 1). 

SMA is a motor neuron disease that affects the voluntary muscles that are used for sitting, crawling, walking, neck control, breathing, and swallowing. 1 in 6000 babies are born with this disease and 1 in 40 people unknowingly are carriers of the gene. SMA does not affect intellect or sensation. There are four types of the disease, with Type 1 being the most severe. Children with SMA are more susceptible to respiratory illnesses that can cause severe breathing problems. At some point, they require special equipment for breathing and a feeding tube to eat. SMA is the #1 genetic killer of children under 2 years old.

Tragically,  Khloë lost her battle with the disease on Friday, January 16th, 2015 at just 13 months old.  We are hoping to raise funds for Kendra and Jordan to help with some of the upcoming costs.  

We love and miss you already,  Khloë.
  • Anonymous 
    • $50 
    • 76 mos
  • Tammy and Tyler Attewell 
    • $100 
    • 77 mos
  • Valerie & Stephen Running 
    • $25 
    • 77 mos
  • Courtney Mahoney 
    • $50 
    • 77 mos
  • Keesje Van 
    • $100 
    • 77 mos
See all

Organizer

Amy Susan 
Organizer
Napanee, ON
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