Just some updates and a little glimpse into our world. Phoenix can now click his tongue, if he needs something he starts clicking to get our attention. I am at the side of his bed in a little room and his nurse is just outside his door at the foot of his bed. All of the support, prayers, positive vibes and healing energy are always going to be needed. Weekends for us are not as busy, all that means is that there are less doctors coming around to talk and check in. He's already had an X-ray, his bed changed, blood taken, chest therapy, his ENT has been in to check on him and adjust his trach, his Respiratory Tech was in doing his checks and updates, so many other things happen too. He's got his oil change (plasma exchange) this afternoon and not sure what else is going to happen today. He has attention around the clock. In our life now it takes 4-5 people to move him to put his X-ray board under him and to change his bedding. When they transport him it takes the same amount of people 20 minutes to get all of his IV's, tube and machine ready, he gets transported on his bed to where ever he needs to go. To adjust his pillow under his head it takes two nurses and myself. Phoenix is very demanding he knows what he wants and what he needs. He watches TV now and for some reason he likes to torture himself and watch the food network, I say he does this to force himself to get better. He gets a nightly bath and a great scalp massage when his hair gets washed. His nurses take such good care of him it makes all the difference. He's had a lot of visitors and that's just what he needs, he needs to see where all the energy is coming from. A special shout out to Devilz By Definition Bruce Pops Munro Shawn Mailloux your love for Phoenix showed last night with his video you guys made him smile and to Jp Gagnon we love the stickers and I wear my shirt with pride can't thank you enough.
On Tuesday night, Phoenix woke up at midnight unable to move all of his body from his neck down and was completely paralyzed. Betty (his mother) called 911 immediately. With the help of paramedics, Phoenix was taken on a stretcher from their apartment in Kingsville and transported to Met Hospital in Windsor, ON. The doctors then stated that this was something that needed to be handled right away and he was then airlifted by helicopter to London Children’s hospital.
After being examined by London Doctors, they have discovered that Phoenix is suspected to have suffered from two strokes. The initial disgnosis was Guillain-Barré syndrome but the doctors now believe there is a possibility of him having Transverse Myelitis. Transverse Myelitis is an inflammation of the spinal cord, a major part of the central nervous system. Recovery is difficult and sometimes unsuccessful. Recovery could take up to 2 years and will include extensive physio therapy.
Funds: Because of Phoenix's condition, Betty has been told by doctors that she should expect to be in London for at least 3 months. Hoping that Phoenix is able to recover, he will need extensive therapy, medication, and 24/7 assistance for a long time afterwards. Betty is the sole provider, as Phoenix's father has passed away recently. She will need as much help as possible. Every penny donated will be used towards Phoenix's recovery which includes; Lodging, travel expenses, Medical costs, income replacement, etc..
Phoenix is a great 14 year old kid who loves his family, solving puzzles (Rubix cube in 40seconds!!!), video games, and even taught himself how to play the guitar. His heart is made of pure gold, just like his mothers and his brother Raven. They've been through a lot as a family and have managed to stay together through it all. But they need help, as we all do at some point in our lives and I really hope that this campaign will be able to do that for them.
DonationsSee top donations
- Donna LANEN
- Rob & Mary-Ann Harris
- Carol Wong
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