Kay Strong

Update- Kaylyn received a new treatment in March called CAR T and after 41 days in the hospital she is was released. She still needs a bone marrow transplant and we are praying that she can find a match. She has rare genetics and they were unable to find a perfect match on the bone marrow registry as of last week. They will continue to search and will start looking into cord blood. We have a narrow window to obtain the transplant so please keep us in your prayers as we continue to remain hopeful.

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Hi, my name is Kaylyn White. I am 12 years old and in the fifth grade. I was diagnosed with Refractory B Cell Acute Lymphoblastic Leukemia or ALL on December 21,2017.

Since being diagnosed I have been in the hospital receiving intense treatments. My leukemia did not respond well to the the induction round of treatment. We will be starting a new phase called consolidation on Wednesday, January 24. This particular phase is 56 days and I will need to remain in the hospital for at least 3-4 more weeks. I know I have a long battle ahead of me and I am prepared to fight!

My family does have health insurance, but we discovered it doesn’t cover MD Anderson or out of network cost. We have looked into all the hospitals they do cover, but none of them offer pediatric oncology.

Just one day in the hospital cost almost $3,000. The cost for my treatment will be a lot, and all the donations made will go directly to fund my treatment!

My family truly appreciates all the love, support, and most importantly all your prayers!

Hugs,
Kaylyn

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What is acute lymphoblastic leukemia?
Acute lymphoblastic leukemia (ALL) is a cancer that affects the white blood cells. These cells fight infection and help protect the body against disease.

Patients with ALL have too many immature white blood cells in their bone marrow.  These cells crowd out normal white blood cells.  Without enough normal white blood cells, the body has a harder time fighting infections.

ALL affects a type of white blood cell called lymphocytes, causing them to build up in the liver, spleen and lymph nodes.

How common is acute lymphoblastic leukemia?
ALL is the most common type of childhood cancer.  It most often occurs in children ages 3 to 5 and affects slightly more boys than girls.  ALL is most common in Hispanic children, followed by those of white and African-American descent.

About 3,000 people younger than age 20 are found to have ALL each year in the United States.

Siblings of children with leukemia have a slightly higher risk of developing ALL, but the rate is still quite low: no more than 1 in 500.

What are the symptoms of acute lymphoblastic leukemia?

Symptoms of ALL include:
Frequent infections
Fever
Easy bruising
Bleeding that is hard to stop
Flat, dark-red skin spots (petechiae) due to bleeding under the skin
Pain in the bones or joints
Lumps in the neck, underarm, stomach or groin
Pain or fullness below the ribs
Weakness, fatigue
Paleness
Loss of appetite
Shortness of breath

Please share the symptoms and make more people aware of this childhood diease.  

Donations

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  • Traci Newell 
    • $35 
    • 33 mos
  • Rebecca Cain 
    • $100 
    • 34 mos
  • Anonymous 
    • $200 
    • 35 mos
  • Anonymous 
    • $50 
    • 36 mos
  • Anonymous 
    • $500 
    • 36 mos
See all

Organizer

Lesley White 
Organizer
Baytown, TX
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