kause4kala

Our beautiful KalaRose is a walking, talking miracle. We were told months before she was ever born that she has a slew of abnormalities but, as my wife and I are against abortion, all we could do was pray and wish for the best. The prognosis was dismal, but that shows what we know. KalaRose was born with Cleft lip and pallet,  a syndrome called Pierre Robin (her lower jaw and lower chin didn't fully develop), she has Hydrocephalus (fluid on the brain), hip dysplasia (her thigh bones were "floating" as she had no sockets in her pelvis. Her wrists and elbows are fused, one leg is longer than the other, she had a faulty heart valve, one of her kidneys is vertical while the other is horizontal, she has 9 fingers and 1 thumb and  the list just goes on and on. To date, she has had nearly a dozen corrective surgical procedures from her head to her feet with more on the horizon but, MY GOODNESS, is this kid a fighter!As the parents of KalaRose, we feel so very blessed to have had the opportunity to raise this amazing child. She has been such a light and source of inspiration for us both. Seeing her overcome obstacle after obstacle has made us both stronger people and we know that we are better because of her. She has such an amazing spirit and has been an absolute joy. Unfortunately, there is the reality that our miracle baby has specific needs that aren't always covered by our medical insurance. After years of reluctance and at the suggestions of friends and family, we have decided to launch Kause4Kala, in hopes a bringing her story public. While KalaRose can walk, much of her travel is done by wheelchair. We were provided a wheelchair but not a vehicle that is wheelchair accessible, and we simply cannot afford ramps, etc. She has special needs and much of the equipment needed for speech and physical therapy, doctors appointments,  and future surgeries can not only be very costly, but often-times isnt covered at all. While we don't believe that there is a more amazing kid in the world, we also realize that, as her parents,  we may be a bit biased. But, in all truth, this couldn't have happened to a better person because she has the fighter spirit, and overflowing optimism that is rarely seen. Add that to the most beautiful personality and, well,  she's just a pretty special little girl that seems to light up all those who come in contact with her. I know my world is brighter each day that I am blessed enough to witness her in action.If it's in your heart to contribute, here's how.                                Please share We would like to thank you in advance for any and all contributions made on your behalf.May you be truly blessed. KalaRose & famil. So great news family things are coming along. KalaRose is awesome as ever. We are working on getting her equipment for school to include a wheelchair lift and if raise enough a new wheel chair. Her chair has been broken all summer. I've summons help with more avail please find it in you heart  I. Soon way again thank you all. We will keep you posted.