Our Charity for this pageant will be for one of our little pageant sister's brother.
Karson Abernathy was born with a MYELOMENINGOCELE which is the worst severity of Spina Bifida at Childrens hospital in Birmingham on July 25th 2014. The simple term for Spina Bifida is a birth defect in which a developing baby's spinal cord fails to develop properly. It occurs when a developing baby's spinal cord fails to develop or close properly while in the womb. We found out when Karson was in the womb at our 5 month mark. They asked us to terminate our pregnancy due to the lying circumstances we were facing. Karson showed zero signs of brain activity during ultrasounds as well. They were predicting Karson to be stillbirth which he was, but he was revived. He was not breathing when they pulled him out of my womb. They monitored him very closely for hydrocephalus after they revived him and got him in the nicu at the children’s hospital. They monitored him for weeks making sure he didn’t show any signs of head growth (hydrocephalus) Karson is a miracle to them and Dr. Brandon Rocque said to us in all his years of practice, Karsons MYELOMENINGOCELE was the largest one he has ever seen. He told us they had 48 hours to figure out why it was so large and to come up with a plan to remove it so Karson didn’t set up meningitis. They explained to us how severe it was and how important it was he underwent surgery in 48 hours. He would have died of infection if they didn’t operate in a timely manner. They literally waited the full 48 hours with doctors working around the clock coming in and out of our nicu unit. They removed his MYELOMENINGOCELE when he was just 48 hours old and it took them approximately 8 1/2 hours! Talking about the longest day of our lives. After he came out of surgery he was in recovery for a few hours until they brought him back to the nicu on the 10th floor. They kept monitoring for everything. The surgery stunned his bladder. Karson is having to cath every 4 hours due to his bladder not working properly. Also Karson has severe GI problems which causes him not to be able to control any feeling when it comes to using his bowels. There is no cure for him at this time with his bladder and his bowels and he has zero function with it. After the surgery we also found out that he is paralyzed fully from knee down. He has had several surgeries trying to correct his leg and feet deformities. He also suffers from severe hip dyplasia. This is probably the worst he suffers from because it affects and controls Karsons walking. There is also no cure for Karsons hip dysplasia. Karson suffered from severe scoliosis and will eventually have to have back surgery but they are speaking in the near older future for him with that, praise Jesus! Spina Bifida has been a nightmare for us and for him but with all that Spina Bifida has gave us, Karson never gives up! He is turning five soon and has been through more then most of us in a lifetime and still goes around with the prettiest brightest smile a baby boy with Spina Bifida can have! Our Karson is a MIRACLE and he may have SPINA BIFIDA but he has a lot of backbone.
Karson has a birthday coming up soon and all he wants is a bike to ride like his sister. But Karson's feet will not pedal a regular bike. Karson needs a bike for children with special needs. These bikes are very expensive. Girls of Grace would like to help Karson's dream of a bike come true. We are asking the girls to collect dollars to donate to Karson's dream. We will award one winner in each of the 3 breakdowns a trophy for bringing in the most money.