Kaiden’s Kavernoma

My son who is now six years old was at home with me laying down while i was very pregnant with my youngest whom now is 20 months, back in April 2016, his brain decided to act different which caused him to have his first ever seizure which was a huge surprise because we’ve never thought he would suffer from this. During testing of EEG’s and MRI’s and everything they found out he had a cavernoma(abnormal group of blood vessels) is on his parietal lobe of his brain which had bled, our world was a whole new one! We have had continuous monitoring on kaiden and while we did we found that he continues to have bleeds and the lesion is growing, we went for a second opinion recently to Cincinnati Childrens Cerebrovascular center and they’ve shed light that Kaiden will probably continue to have seizures for life that removal of the cavernoma wouldn’t take that away but we do need to have surgery for the cavernoma to be removed due to also finding he has a DVA (developmental venous anomaly) next to the cavernoma which increases his risk for hemorrhage and stroke!

We are preparing to have surgery February 2nd and we have set up this page since we will be missing work, traveling 2 hours weeks prior and after surgery, as well as the cost of everything medical that kaiden will be needing, due to us having insurance through our employer and this all happening at the beginning of the year we will be handing out a lot of money for this to save his life.


Please please share and anything will help!