As her name says, she is a true blessing to our family, but she does not live life easy. I want to tell you a bit about our family life with her on a day to day basis, yes some might say it's sad, but the truth is I don't know what my life would have been like if she didn't choose me to be her Mummy.
We are truly blessed to have her in our world and yes I'll be honest it is hard and very challenging but one smile from her makes my day. Seeing her happy even for the smallest amount of time lets me forget about all the hard times and struggles we face on a daily basis while caring for a child 24/7 with a disability. Kaiarna's daily struggles include seizures, between 10-20, a day which means she is required to take a cocktail of medications throughout the day and night, every four hours to be exact. Another struggle she faces is Dystonia which for me is the hardest of all as this causes her pain. To explain briefly, it's like all the muscles throughout the body are cramping at the same time, again and again, causing her little body severe pain and as a result has led to her right hip being dislocated. I could go on and on about her daily struggles as there is so much more but I don't want to focus on the negative stuff because she is so much more than that.
Kaiarna has touched so many lives and has proven so many people wrong by still being here with us today. When she reached her first birthday, we were told that she would be lucky to see her 2nd and her life expectancy was very limited. Kaiarna will never achieve those normal childhood milestones, Kaiarna is unfortunately non mobile and non verbal, however she loves going for walks, listening to music, watching Shrek or frozen on her iPad oh and she's a big marvel fan as well. She loves being read to and all those girly things like getting her nails done. And guess what, my baby girl will be turning 5 in March 2020 and this is the reason for this GoFund me page.
For the first time I'm reaching out to family, friends and whoever took the time to read Kaiarna's story to ask for help in raising a bit of money toward a celebration of life for Kaiarnas 5th birthday. I want to be able to give my baby girl the best birthday party she deserves. If we are lucky enough to raise more than what we need for her birthday party, I would love to go on a family trip/outing also, somewhere close as we can't travel too far away from the hospital.
So that's the goal everyone, to raise money to celebrate her life, as we are truly grateful and blessed to even have this opportunity of reaching and celebrating such a miracle we never thought we would have with our beautiful girl Kaiarna.
- Hayley Tutton
- Ai Tajimi
- Louise Lovell
- Tiarne Wood
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