Kaedens transplant donations

Hi, my name is Kaeden. I’m a one year old going on two and a few months ago I was diagnosed with a rare genetic disorder called Mucopolysaccharidosis I️ or MPS1. This condition effects many of my body functions ultimately leading to organ damage. It’s caused by a mutation in the gene that makes an enzyme called alpha-L-iduronidase. My enzyme is either produced in low amounts or not at all. Our bodies need these enzymes to break down substances called glycosaminoglycans, or GAG. If these are not broken down it causes to build up in the cell, leading cell, tissue, and organ damage. The doctors told my mom I had a life expectancy of 5-10 years. We refuse to believe that, through treatments like chemo, bone marrow transplants, and prayer we believe we can survive this. My mommy takes care of me and my sister all on her own and unfortunately insurance does not cover all the costs of my treatments. We are not looking for a handout but searching for hope. Hope that these treatments can give me more time. Time with my sister Kali, time with my mommy Macey. Time to grow and learn and play with my cousins like a normal kid. By donating your giving me the opportunity for a longer life. Thank you for the support and prayers.
To see my journey follow my instagram @Prayersforkaeden.