Terri's ALS Journey

On January 8, 2015, Terri and her husband Jeff received a confirmation diagnosis from Henry Ford Hospital that Terri has ALS, also known as Lou Gehrig's disease.  You can learn more about ALS by visiting: http://www.alsa.org/about-als/what-is-als.html.

Since that time, Terri has traveled to the Mayo Clinic, #1 medical institution in the US, to receive a second confirmation and has began the journey to face her diagnosis.  Right away, during that trip in early February, Terri made it known to her doctors that she is anxious to participate in any clinical trials shown to improve patients with ALS.  The medical staff said its difficult to get into a trial and many people wait a very long period of time.

Being strong in her faith, Terri forged ahead with the belief she would be selected.  Well her prayers have been answered.  On March 27, Terri received a call that she is going to be one of 48 participants in the US study of Brainstorm's NurOwn stem cell trial.
 (https://clinicaltrials.gov/ct2/show/study/NCT02017912?term=nurown+stemcell&rank=1)

There are many travel costs associated with this study.  Terri will travel back to Rochester, Minnesota 10 times in the next twelve months.  The 690 mile journey, lodging, and food x 10 trips = $$ are all on their own dime. Terri has also modified her diet and is taking a regiment of healthy supplements to support prolonging the strength of her muscles.

Terri continues to work as a real estate agent, while Jeff is a programmer at La-Z-Boy in Monroe.  However, all of these trips and this new 'not-so-normal' lifestyle costs money and no one household can maintain the cost of everyday life, while fighting a life threatening disease such as ALS.  Please, let's band together and help ease the financial burden of participating in this miracle stem cell trial.  Please donate today.  More fundraising events are in the works, but for now, this is the easiest and quickest way to help out.

Read about Terri's journey by joining the Facebook Group: https://www.facebook.com/groups/terriscourageousbattlewithals/

You can also help support the acceleration of a different drug that is not yet available in the US to ALS patients.  Let’s show the FDA that we support the accelerated approval of Genervon GM604 so that all ALS patients can have a chance. Sign this petition and share it with your friends: SIGN PETITION .

May 2016 - Update - Terri and Jeff are still waiting to learn the results of their 2015 clinical trial.  In the mean time, they spent some time in Washington fighting for more awareness and funding for ALS patients everywhere.  They are presently selling their Canton home and seeking a one story home for the future.  Your contributions to this fund will continue to help them deal with the high expenses associated with treating Terri as her ALS illness progresses.  Thank you! 

God is good always, so are miracles and cures. Now, let's go kick some ALS, Terri style!  Thank you!

Donations (0)

  • Kirste Moline 
    • $50 
    • 8 mos
  • Milbrey Campbell 
    • $100 
    • 8 mos
  • Gayle Wangbickler 
    • $25 
    • 8 mos
  • Kristin Blake-Thomas  
    • $100 
    • 8 mos
  • Anonymous 
    • $5,000 
    • 8 mos

Organizer 

Peggy Rosati Fenwick 
Organizer
Canton, MI
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