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<div>Hi, I’m Eden and I’m raising funds for my beautiful nephew Kole. Please take the time to read his story below and donate anything you can to help pay for his treatment.
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<div>Kole’s Story
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<div>Kole was born back in 2024 and if you’d have said then two years on I’d be writing a Go Fund Me story to try and raise money to save his life I’d have said you were lying. Unfortunately, this is Kole’s parent’s new reality. As a family we are devastated.
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<div>Kole was born on the 4th of July 2024, a perfect 7lb 8oz and the final member of their little family. A dream not everyone has the privilege of making a reality. A small stay in the NICU due to a few minor complications and they thought they’d be living in their little bubble for the rest of their lives. Watching him grow and live his life any which way he’d like to with his siblings Koby and Ayla at his side.
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<div>Fast forward 6 months and it was clear Kole wasn’t hitting milestones like others his age. After many a hospital appointment he was diagnosed with BESS and Global Developmental Delay. It later became clear that although scans had shown this, our little Kole was also showing signs of severe autism at a very young age. As a family we grieved the life we thought he’d have and then accepted the cards life had dealt him, he was PERFECT just as he was and had a family behind him that would support him and his needs for the rest of his life.
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<div>Kole is now 22 months old and on Tuesday 28th of April 2026, almost two years on from one of the happiest days of our lives, Kole was diagnosed with Sanfilippo Syndrome (more commonly known as childhood dementia). This devastating diagnosis means that our perfect Kole will have his skills snatched from him from as early as 4 years old until he is snatched from us and everyone who loves him.
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<div>Trials exist all over the world and we’re fighting everyday to get their perfect boy onto one but in the meantime the FDA are reviewing and potentially approving a treatment that has already proven successful. The downside is that everything in life has a price and current estimates show a minimum of £2,000,000 needed for treatment.
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<div>We know times are hard for everyone and we know it’s a huge amount of money to raise but we have time and time is not something this disease usually gives its victims. On average people find out when it’s too late and the build up of toxins has already started on taking things away from the child.
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<div>Please help us to give our Kole as long a life as possible, to make as many memories as we can and so we can safely say we did everything we could to have him here with us for as long as possible.
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<div>We aren’t asking for thousands of pounds from individuals, we’re asking for two million people to each give as little as £1.
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<div>Thank you for reading and for helping save our Kole
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Hope Spencer bake

Anonymous

Jamie Longley

Victoria Taylor

Kyra Rice

Leanne Betts

Nicola Powell

Lucy Webster

Jamie Butler

Jessica Sanders

David Ditcham

Dayna Bailey

Gary Quinton

Sean Parry

Rob Johnson

Kole’s Fight

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platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

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comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

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Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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AMP24 New Funds Only PROD (DO NOT MODIFY)

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UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

Support Comments Allowlist

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

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Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

ai_title_page

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openai

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isCampaignOwner

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Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Kole’s Fight

Still £1,488,975 to go. Help us build momentum.