Hello this is the hardest thing me and my family have had to go through.My daughter has turned 6 as of the end of August. Sadie had what was called PBD zellwegers.
Sadie wasn't supposed to live past 1 year to 18months and Sadie turned 6 in August.
Sadies life expectancy was already above and beyond what they expected and Sadie spent the last of her days with family in home and passed away in hospice in moms arms on November 3rd.
Sadie had hypertonia towards the end and a weakened liver which sadie was born with a weak liver.
Myself and husband have 2 other children and have been out of work for som