Amy D’Ambra, Annette Thompson, Barbara Reynolds and Kathy Nenneker are organizing this fundraiser on behalf of Judy Rhodes.
A few months ago we were devastated to learn that our beautiful brilliant sister, Judith Dahlman Rhodes, was diagnosed with ALS – a particularly devastating form of ALS, progressive bulbar palsy.
This cruel variant of ALS has taken Judy’s ability to speak and has left her with difficulty swallowing, breathing, and eating. She has lost 1/3 of her body weight and needs assistance with daily tasks. For any of you who know Judy, you know she has spent her adult life defending the rights of abused parents and children and speaking out on behalf of others. Now we’re speaking out to help her in this fight.
Following a 30-year career as a Family Law Attorney, in 2018 Judy achieved her life-long goal of becoming a Judge when she was appointed as Judge and Commissioner for Ventura County. On August 14th, 2020, she was responsible for an entire courtroom, yet today, November 14th, Judy’s focus is on managing her energy--sleeping and eating enough nutrients to keep her body functioning.
In February of this year, Judy developed a major infection in her jaw following a dental surgery. She gradually began to have trouble speaking and went from doctor to doctor to try to figure out what was happening. Initially she was told the 12th cranial nerve had been damaged, and that it would heal. She went to speech therapy. Her slurring got worse, and then she had trouble swallowing. Multiple neurologist visits led to more referrals, EMGs, scans, swallow tests and blood tests until in September Judy received the diagnosis of progressive bulbar palsy from a specialist at Cedars Sinai.
The team at Cedars was kind, but the diagnosis was devastating. There is no treatment for ALS. There are several drugs that are currently prescribed, but their side-effects can be serious and their impact is minimal. Judy was told that the next treatment would likely be a feeding tube.
There is a Promising Drug
There is HOPE. There is an opportunity to reverse the effects of ALS. There is a chance that Judy will survive. She needs your help to stay strong and fight for the right to receive NurOwn. NurOwn is a stem cell drug shown to have slowed the toll of ALS and prolong life. NurOwn is in Phase 3 clinical trials and has been going through the FDA’s trial phases for nearly a decade. Until NurOwn is approved by the FDA, the cost of producing the drug makes distribution impossible.
ALS is 100% fatal without NurOwn.
Judy has used her voice to serve the community for more than 30 years. Although this disease has taken her voice, it has ignited her passion to fight for the rights of others. Together we can support the fast-tracking of NurOwn and other drugs with positive results in the fight against ALS.
We’re Asking You to Help Judy Fight ALS
Judy needs your help to receive alternative treatments that provide her the strength and restoration needed to continue this fight. Without successful therapies Judy’s life expectancy is 6 months to 3 years. She has found effective treatments using nutrition, chiropractic care, acupuncture, physical therapy and water therapy. All these treatments are experimental and not covered under insurance.
The cost of Judy’s supplements, treatments and therapies has been ranging from $85 to $500 per day, here is the current list:
Cranial sacral therapy
Supplements and vitamins
PT and OTMassage therapy
Stem cell therapy
Judy wants to document her plan, in the hope of helping future ALS patients lead longer, happier, more comfortable and functional lives… AND have more quality time with family, friends, and their communities.
With careful nutrition and care Judy has been able to sustain without the feeding tube.
Find a Cure for ALS
This GO FUND ME CAMPAIGN is about us fighting together to find a cure for ALS. With your help we can lobby for the fast-tracking of NurOwn for ALS patients and support Judy with therapies that help her fight off the debilitating effects of ALS.
Please consider joining us in this fight for Judy’s life and for the lives of so many.
We need your help TODAY to find a cure for ALS. Judy is willing and ready to experiment on HOPE… TOGETHER WE CAN FIND A CURE!
Thank you from the bottom of our hearts … now we’re ready to fight.
With love, TEAM JUDY!
Take Action With Us
Help us fast track promising treatments for ALS.
Reach out to your congressional representative here(https://www.house.gov/representatives/find-your-representative) and encourage them to pass HR 8662 – Accelerating Access to Critical Therapies for ALS Act, 116th Congress.
- Nancy Day
- scott klopert
- Maddy Seder
- Tammy Petruccellli
Organizer and beneficiary
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