Jordyn's Journey AZ

Our beautiful daughter, Jordyn, was diagnosed with a very rare, incurable disease called Psudeotumor Cerebri (please see the link below that I have attached) in May of 2014. She was 14 years old at the time. Never more than an ear infection her whole life. Now, her life consists of constant trips to the ER, brain surgeries, spinal surgeries, lumbar punctures, and constant 24 hour a day pain. Throughout all of this, our daughter has been a superstar! Missing most of her high school years because she was in the hospital, she still has a wonderful spirit and is such a loving and giving person that everyone seems to gravitate to! However, recently, she has been admitted to the ER for possible stroke, blood clots, pulmonary embolisms along with a myriad of other symptoms including epilepsy.
Jordyn continues her Valiant fight! Fighting  to be a college student  so that she may become a doctor in her future . Giving her father, her brothers and I the strength to continue on as well.
However valiant the fight, it has been extremely difficult to keep up! Even with insurance, which we feel very blessed to have, we are spending tens of thousands out of our own pocket every year to keep fighting! I slowly see us running out of options because we are running out of money to support her fight through experimental trials, constant hospitalizations, and sometimes, very expensive medication.
I have come to the point after fighting this fight with her for 4 1/2 years, that I'm reaching out to my family, friends, and all of you out there on social media sites for help! Again, please take a look at the link below (you may also look it up on YouTube) to understand the condition that affects Jordyn and the people that love her!Thank you everyone for your time, God bless you!

https://youtu.be/MBX9gazAGxc