<div>Marylu’s Road to a Heart Transplant
</div>
<div><br />
</div>
<div>On March 28, our beloved daughter Marylu was diagnosed with Histiocytoid Cardiomyopathy (HCM)—an extremely rare and life-threatening congenital heart disease that primarily affects infants, particularly females. It is characterized by abnormal histiocytoid cells in the myocardium, leading to arrhythmias and sudden cardiac events. HCM is often undetected until it's too late, with many cases only discovered during autopsy. Fewer than 100-150 cases have been reported worldwide, making Marylu’s situation incredibly rare and urgent.
</div>
<div><br />
</div>
<div>But her battle began long before that diagnosis.
</div>
<div><br />
</div>
<div>On January 9, at only 10 weeks old, Marylu suffered a sudden cardiac arrest at home. I immediately began CPR until paramedics arrived and rushed her to the hospital.
</div>
<div>On January 10, she was placed on ECMO (a heart-lung bypass machine).
</div>
<div>On January 22, she suffered a stroke, and the next day, January 23, she underwent her first open-heart surgery, where doctors implanted an ICD/pacemaker to manage her dangerous arrhythmias.
</div>
<div>After weeks in intensive care, she was transferred to an inpatient rehab center on February 11.
</div>
<div>On March 12, she was readmitted due to severe arrhythmias, and her ICD delivered over 300 shocks in 3 days—depleting a 14-year battery to just 8 months.
</div>
<div>On March 14, she underwent ECMO support with her chest left open.
</div>
<div>And on March 19, she was placed on the Berlin Heart BiVAD, a mechanical device that now keeps her alive while she awaits a life-saving heart transplant.
</div>
<div>On April 16, she underwent diaphragm plication surgery to help her lungs and with her extubation.
</div>
<div><br />
</div>
<div>Today, Marylu is 6 months old and a fighter. Marylu has endured more in a few months than most do in a lifetime. Her strength is beyond words, but this journey comes with overwhelming emotional, physical, and financial burdens.
</div>
<div><br />
</div>
<div>We are asking for your help whether through a donation, a share, or a prayer.
</div>
<div><br />
</div>
<div>From the bottom of our hearts, thank you for being part of her journey.
</div>
<div><br />
</div>
<div>Please keep Marylu in your prayers:
</div>
<div><br />
</div>
<div>Dear God,
</div>
<div>Wrap Marylu in Your healing arms. Strengthen her heart, her body, and her spirit. Guide her doctors, comfort her loved ones, and light the path toward her recovery. May she feel hope, love, and peace each step of the way. Amen.
</div>
<div><br />
</div>
<div>Thank you,
</div>
<div><br />
</div>
<div>Perez-Muñoz Family
</div>
<div><br />
</div>
<div>‐-------------------------------------------
</div>
<div><br />
</div>
<div>El Camino de Marylu hacia un Trasplante de Corazón
</div>
<div>El 28 de marzo, nuestra querida hija Marylu fue diagnosticada con Miocardiopatía Histiocitoide (HCM), una enfermedad cardíaca congénita extremadamente rara y potencialmente mortal que afecta principalmente a bebés, especialmente a las niñas. Se caracteriza por la presencia de células histiocitoides anormales en el miocardio, lo que provoca arritmias y eventos cardíacos repentinos. La HCM no se detecta hasta que es demasiado tarde, y muchos casos solo se descubren durante la autopsia. Se han reportado menos de 100-150 casos en todo el mundo, lo que hace que la situación de Marylu sea increíblemente rara y urgente.
</div>
<div><br />
</div>
<div>Pero su lucha comenzó mucho antes de este diagnóstico.
</div>
<div><br />
</div>
<div>El 9 de enero, con solo 10 semanas de vida, Marylu sufrió un paro cardíaco repentino en casa. Inmediatamente comencé a realizarle los primeros auxilios hasta que llegaron los paramédicos y la llevaron de urgencia al hospital.
</div>
<div>El 10 de enero, fue colocada en ECMO (una máquina de bypass cardiopulmonar).
</div>
<div>El 22 de enero, sufrió un derrame cerebral, y al día siguiente, el 23 de enero, se sometió a su primera cirugía a corazón abierto, donde los médicos le implantaron un desfibrilador/cardíaco (ICD)/marcapasos para manejar sus peligrosas arritmias.
</div>
<div>Después de varias semanas en cuidados intensivos, fue transferida a un centro de rehabilitación el 11 de febrero.
</div>
<div>El 12 de marzo, fue readmitida debido a arritmias graves, y su ICD/marca pasos le dio más de 300 descargas en 3 días, agotando una batería de 14 años a solo 8 meses.
</div>
<div>El 14 de marzo, fue sometida a soporte ECMO con el pecho abierto.
</div>
<div>Y el 19 de marzo, fue conectada al Berlin Heart BiVAD, un dispositivo mecánico que ahora la mantiene con vida mientras espera un trasplante de corazón que le salve la vida.
</div>
<div>El 16 de abril, se sometió a una cirugía de plicatura del diafragma para ayudar sus pulmones y con su extubación.
</div>
<div><br />
</div>
<div>Hoy dia, Marylu tiene 6 meses y es una luchadora. Marylu ha soportado más en unos pocos meses que la mayoría en toda una vida. Su fortaleza es indescriptible, pero esta situacion conlleva cargas emocionales, físicas y financieras.
</div>
<div><br />
</div>
<div>Les pedimos su ayuda, ya sea mediante una donación, compartiendo su historia o enviando oraciones.
</div>
<div><br />
</div>
<div>Desde el fondo de nuestros corazones, gracias por ser parte de este camino.
</div>
<div><br />
</div>
<div>Por favor, mantengan a Marylu en sus oraciones:
</div>
<div><br />
</div>
<div>Querido Dios,
</div>
<div>Envuelve a Marylu con Tus brazos sanadores. Fortalece su corazón, su cuerpo y su espíritu. Guía a sus médicos, consuela a sus seres queridos y alumbra el camino hacia su recuperación. Que sienta esperanza, amor y paz en cada paso del camino. Amen.
</div>
<div><br />
</div>
<div>Gracias,
</div>
<div>Familia Perez-Muñoz
</div>

Anonymous

Tara Doherty

Isabel Galindo

Lina Shuster

Lourdes Arena

Citlalin Flores

Marylu’s Journey: The Wait for a New Heart”

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Marylu’s Journey: The Wait for a New Heart”

Todavía faltan $6,436. Ayúdanos a conseguir impulso.