John's lifesaving transplant

John was diagnosed with Idiopathic Pulmonary Fibrosis in November of 2014, at the age of 49.  Far too young to be diagnosed with a terminal illness.  At first he was able to continue his work with the military but over time his lung function got to the point where walking or any exertion was a chore.  He was forced to stop working in January of 2018. 
John has started the extensive evaluation process for a bilateral lung transplant at the Cleveland Clinic in Ohio.  John wants to be around to see his kids achieve the milestones in life we all want to be present for, e.g.  graduations, first dates, prom, weddings, more grandchildren.  You name it, he wants to be there.  Without the lung transplant, that won't be possible. 
As this terrible disease continues to rob John of his lung function, his functional ability will continue to deteriorate.  While we are fortunate to have great insurance, not all expenses are covered.  The funds raised will be used to cover the supplies not covered to aid in John's mobility, travel expenses to and from Cleveland for the family and housing expenses in Cleveland.  We have to travel frequently to the Cleveland Clinic for appointments, leaving our kids at home to be cared for by family.  When he does get the call that a donor is available, we will have to relocate to Cleveland for a minimum of 10 weeks.  Because we still has kids at home, we will have to maintain 2 households during this time.  Unfortunately, the Cleveland Clinic, nor the VA, offer free of low cost accommodations.  We have  limited vacation/personal time and when that coverage runs out, we will be without an income until John is allowed to come home.
Thank you for considering John and his family during this difficult time.

Donations (0)

  • Melissa Baker 
    • $25 
    • 9 mos
  • Kellan Sisson 
    • $50 
    • 9 mos
  • Trish “trash” Nelson 
    • $100 
    • 9 mos
  • Anonymous 
    • $50 
    • 10 mos
  • Nancy and Bob Butcher 
    • $150 
    • 10 mos

Organizer 

Tracy Hilderbran 
Organizer
Rome, NY
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