Jim Staton's Fight for Life
Donation protected
Welcome to Jim's go fund me page. My name is DeAnna and I am one of his fellow M. S.ers and like Jim multiple sclerosis took away abilities. For me it took the ability type, run, play tennis, ride a dirt bike and more. I joined a California multiple sclerosis group and I saw videos of a man having a medical procedure called HSCT (hematopoietic stem cell transplant). I knew something had to be done to stop this, I didn't sign up for it anyway, niether did Jim.
HSCT stops the progression of multiple sclerosis,
which is a progressive disease, an Evil disease. I fundraised and had my own HSCT and now I feel sharing is the best way to pay it forward.
____________
this is my blog, showing the process of how HSCT works. Also you can Google HSCT Blogs for others who have had this life changing treatment. http://www.chasingstemcells.wordpress.com
___________________________
Jim Staton's Fight for Life
James (Jimmy) Staton
James Staton (Jimmy) was diagnosed with Multiple Sclerosis late in his adulthood. As a young man, Jimmy was an athlete, a student, a worker and a good son and brother. As a youth, he walked, rode bikes and played physically in the neighborhood. He used to play football and sports in High School. His love of cars and technical things later translated to him becoming an Electrician. He was married but did not have any children. He was active and is nice and fun loving!
After the Disease, he was hit hard and began not to be able to walk. They experimented with many medications and one group of medicines damaged his vocal cords. Although it is very difficult for him to communicate, a now permanent condition, he is still in there and still good old Jimmy. His disposition makes him down, but Jimmy wants you to know he is not out! His free willing demeanor and general tough attitude is the only reason he survives. He forces himself to get up to change television channels so he does not become respite. He physically still tries very hard to get around even with his walker.
Please donate to Jimmy, a good American that has been stricken with a terrible disease! Your donations will help him end the disease and stop it’s progress while allowing him to heal and build on what he has left using his great attitude and tremendous survival skills as well as his sheer determination. His family has little to no money. His savings has nearly been depleted. Your help will improve his life and cause him to live much longer and with more positivity and hope! Please do not pass Jimmy up, he deserves your love and support!
__________________________________
A Hematopoietic Stem Cell Transplant using his own stem cells is what Jim needs to change his life.
__________________________________
This is m. s. remember Annette?
https://www.youtube.com/watch?v=XGV7fyW82lM
__________________________________
It is very uncommon to find a neurologist that supports HSCT as a treatment for autoimmune neurological disorders (such as MS and CIDP, etc.). Neurologists know a whole lot about nerves but usually know quite little about the actual underlying pathogenesis of autoimmune diseases which reside in the immune system. Because neurologists are typically not educated, not trained and not experienced in HSCT and why it is the most effective medical intervention so far discovered for hematologically-rooted autoimmune disorders, it is human nature that someone ignorant on the subject will not support something they don't understand. I like to use the analogy that you wouldn't choose a house painter to fix your car engine because it is a complete mismatch of skills, so why would you choose a neurologist to consult about your immune system? (A hematologist is the right specialty.) For treatment of these disease types, seems like the only skill most neurologists have is to prescribe a lifetime of drugs that have no hope of halting the underlying autoimmune disease the way HSCT can.
_____________________________________
MS Symptoms
What You Can do To Understand,
Painful Heavy Legs
Apply Tightly 20 LB ankle weights and 15 LB thigh weights then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now?
Painful Feet
Put equal or unequal amounts of small pebbles in each shoe then take a walk, if we are mad at you we would prefer needles to pebbles.
Loss of Feeling in Hands and/or Arms
Put on extra thick gloves and a heavy coat then try and pick up a pencil, if successful stab yourself in the arm.
Loss of Feeling in Feet and/or Legs
Ask a doc for a shot of Novocain in both of your legs and then try and stand up and walk without looking like the town drunk. Hopefully you won't fall down.
TN (Trigeminal Neuralgia)
Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you want something easier to do, get someone to punch you in the jaw preferably daily.
Uncontrollable Itching
Glue or sew small steel wool pads to the inside of your shirt, pants and undergarments wear them for an entire day.
Tingling
Stick your finger in an electrical socket - preferably wet.
Tight Banded Feeling
Put 12 inch wide belt around you and make is as tight as you can and leave it there for the entire day. How ya' breathing?
Shots
Fill one of our spare needles with saline solution, saline won't hurt you, we would love something worse but don't want to end up in jail. Give yourself a shot every time we do our shot.
Side Effects From the Shot
Bang you head against a wall, wrap yourself in a heating pad, wrap your entire body with an ace bandage tightly then finally treat yourself to some spoiled food or drink.
Trouble Lifting Arms
Apply 20 LB wrist weights and try and reach for something on the highest shelf in your house.
Spasticity
Hook bungee cords to your rear belt loops and rear pant leg cuffs then for your arms hook bungee cords to your shirt collar and cuffs on shirt sleeves then go dancing.
Poor Hearing/Buzzing in Ears
Put a bee in each ear and then put a plug in each one so that the bee stays put...bzzz
Balance and Walking Problems
Drink 100 proof grain alcohol and then sit and spin in an office chair for 30 minutes, now get up and see what happens.
Urgently Needing to Pee
We put a .5 liter remote controlled water bag and drip tube in your pants, we point out 2 restrooms in a crowded mall, then we tell you that you have 30 seconds before we activate the water bag (by remote control) to get to a restroom. Just for spite we may make that 20 seconds without telling you.
Bizarre and Inexplicable Sensations
Place tiny spiders on your legs or arms and allow them to periodically crawl around throughout the day, heck all day would be good too.
Pins and Needles
Stab yourself repeatedly with needles all over your body or better yet....Get a very large tattoo in your most sensitive area.
Dizziness (Vertigo)
Get on a gently rocking boat all day and all night and take several walks around the deck with your eyes closed.
Fatigue
Stay awake for two full days to induce incredible fatigue and then cook dinner, clean the house, walk the dog and see how you feel. Please do not compare MS fatigue to you being tired from only a few hours of sleep - it's not the same at all.
Cognitive Function (Brain Fog)
Take a liberal dose of sleeping pills but stay awake. Try and function properly and think clearly. To make it even more real without killing yourself of course, take the sleeping pills with a small sip of wine.
Bowel Problems
Take a 4 day dose of an anti-diarrhea medicine followed directly by a 3 day dose of stool softeners for a minimum of 3 weeks, at the end of 3 weeks sit down on a hard un-cushioned chair and stay there till tears appeare.
Burning Feeling
Make a full pot of boiling water and then have someone fill a squirt gun with the boiling water and shoot it at yourself all day long. However, you can give us the pleasure of shooting you instead...optional of course.
Intention Tremor
Hook your body to some type of vibrating machine try and move your legs and arms.....hmmm are you feeling a little shaky? You are not allowed to use anything fun for this lesson.
Buzzing Feeling When Bending Our Heads to Our Chest (L'Hermitte's)
Place an electrical wire on your back and run it all the way down to your feet, then pour water on it and plug it in.
Vision Problems (Optic Neuritis)
Smear Vaseline on glasses and then wear them to read the newspaper.
Memory Issues
Have someone make a list of items to shop for and when you come back that person adds two things to the list and then they ask why you didn't get them. When you come back from shopping again they take the list and erase three things and ask why you bought those things.
Foot Drop
Wear one swim fin and take about a 1/2 mile walk, nothing else needs to be said for this one, you'll get it.
Fear
Dream that you have lost complete feeling in your feet and when you wake up wiggle your feet, just so happens they don't move. Think about this every night wondering whether something on your body won't work the next day when you wake up.
Swallowing
Try swallowing the hottest chili pepper you can find.
Heat Intolerance or Feeling Hot When it's Really Not
You are on a nice vacation to Alaska. It's 35° outside and 65° inside. Light a fire for the fireplace and then get into it. Once you have reached about 110° tell me how you feel, even a person without MS would feel bad, now add all of the above symptoms - welcome to our world.
___________________________________
A Silent Epidemic
Autoimmune diseases (AI) cause significant and chronic morbidity and disability. Consider this quote in the publication, The Scientist (Volume 17, Issue 9, Page 30, and Date: 5/5/2003). "These disorders affect an estimated 5% to 8% of the US population (or currently, 16 to 27 million people)." Thousands of people are newly diagnosed every month. The loss in productivity to our nation's economy (not to mention the loss of income to families) due to disabilities associated with these diseases is almost incalculable. There is currently no cure for these diseases.
The generally accepted standard of care (immune-modulation treatments) do not halt the disease progression. Most treatments are strictly for symptomatic relief, or an attempt to slow the progression. To complicate matters, those with one of these diseases have varying rates of progression. Some people are relatively asymptomatic throughout their lifetimes, while others suffer rapid symptomatic progression (like an Open-ended Bell Curve). Most people with these diseases gradually become more symptomatic, progressing towards greater pain, suffering and disability.
In many of these autoimmune diseases, halting further progression will literally save their lives. The improvements in the Quality of Life for all patients offer hope for a brighter, more productive future. With an impressive success rate, these HSCT procedures are the only truly viable options currently available for many thousands of people with autoimmune diseases.
The Immune Renewal Foundation embraces medical processes that are patient centric; that are not Drug-Centered. Procedures that utilize established, yet refined, medical technologies to Reboot the Immune System; thus halting further progression of autoimmune diseases. These procedures are called "Autologous Haematopoietic Stem Cell Transplant with High-dose chemotherapy, aka HSCT".
As of 2013, these procedures have rarely been employed for the treatment of autoimmune diseases. Yet the efficacy of these procedures have been proven in Clinical Trials. For whatever reason, these procedures are not widely known in the medical community for the treatment of autoimmune diseases. Only a very small fraction of sufferers know that these "Procedures" exist or that they might be a treatment option. The Immune Renewal Foundation's Mission is to spread awareness of the existence of these HSCT procedures to as many sufferers of autoimmune diseases as possible.
HSCT stops the progression of multiple sclerosis,
which is a progressive disease, an Evil disease. I fundraised and had my own HSCT and now I feel sharing is the best way to pay it forward.
____________
this is my blog, showing the process of how HSCT works. Also you can Google HSCT Blogs for others who have had this life changing treatment. http://www.chasingstemcells.wordpress.com
___________________________
Jim Staton's Fight for Life
James (Jimmy) Staton
James Staton (Jimmy) was diagnosed with Multiple Sclerosis late in his adulthood. As a young man, Jimmy was an athlete, a student, a worker and a good son and brother. As a youth, he walked, rode bikes and played physically in the neighborhood. He used to play football and sports in High School. His love of cars and technical things later translated to him becoming an Electrician. He was married but did not have any children. He was active and is nice and fun loving!
After the Disease, he was hit hard and began not to be able to walk. They experimented with many medications and one group of medicines damaged his vocal cords. Although it is very difficult for him to communicate, a now permanent condition, he is still in there and still good old Jimmy. His disposition makes him down, but Jimmy wants you to know he is not out! His free willing demeanor and general tough attitude is the only reason he survives. He forces himself to get up to change television channels so he does not become respite. He physically still tries very hard to get around even with his walker.
Please donate to Jimmy, a good American that has been stricken with a terrible disease! Your donations will help him end the disease and stop it’s progress while allowing him to heal and build on what he has left using his great attitude and tremendous survival skills as well as his sheer determination. His family has little to no money. His savings has nearly been depleted. Your help will improve his life and cause him to live much longer and with more positivity and hope! Please do not pass Jimmy up, he deserves your love and support!
__________________________________
A Hematopoietic Stem Cell Transplant using his own stem cells is what Jim needs to change his life.
__________________________________
This is m. s. remember Annette?
https://www.youtube.com/watch?v=XGV7fyW82lM
__________________________________
It is very uncommon to find a neurologist that supports HSCT as a treatment for autoimmune neurological disorders (such as MS and CIDP, etc.). Neurologists know a whole lot about nerves but usually know quite little about the actual underlying pathogenesis of autoimmune diseases which reside in the immune system. Because neurologists are typically not educated, not trained and not experienced in HSCT and why it is the most effective medical intervention so far discovered for hematologically-rooted autoimmune disorders, it is human nature that someone ignorant on the subject will not support something they don't understand. I like to use the analogy that you wouldn't choose a house painter to fix your car engine because it is a complete mismatch of skills, so why would you choose a neurologist to consult about your immune system? (A hematologist is the right specialty.) For treatment of these disease types, seems like the only skill most neurologists have is to prescribe a lifetime of drugs that have no hope of halting the underlying autoimmune disease the way HSCT can.
_____________________________________
MS Symptoms
What You Can do To Understand,
Painful Heavy Legs
Apply Tightly 20 LB ankle weights and 15 LB thigh weights then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now?
Painful Feet
Put equal or unequal amounts of small pebbles in each shoe then take a walk, if we are mad at you we would prefer needles to pebbles.
Loss of Feeling in Hands and/or Arms
Put on extra thick gloves and a heavy coat then try and pick up a pencil, if successful stab yourself in the arm.
Loss of Feeling in Feet and/or Legs
Ask a doc for a shot of Novocain in both of your legs and then try and stand up and walk without looking like the town drunk. Hopefully you won't fall down.
TN (Trigeminal Neuralgia)
Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you want something easier to do, get someone to punch you in the jaw preferably daily.
Uncontrollable Itching
Glue or sew small steel wool pads to the inside of your shirt, pants and undergarments wear them for an entire day.
Tingling
Stick your finger in an electrical socket - preferably wet.
Tight Banded Feeling
Put 12 inch wide belt around you and make is as tight as you can and leave it there for the entire day. How ya' breathing?
Shots
Fill one of our spare needles with saline solution, saline won't hurt you, we would love something worse but don't want to end up in jail. Give yourself a shot every time we do our shot.
Side Effects From the Shot
Bang you head against a wall, wrap yourself in a heating pad, wrap your entire body with an ace bandage tightly then finally treat yourself to some spoiled food or drink.
Trouble Lifting Arms
Apply 20 LB wrist weights and try and reach for something on the highest shelf in your house.
Spasticity
Hook bungee cords to your rear belt loops and rear pant leg cuffs then for your arms hook bungee cords to your shirt collar and cuffs on shirt sleeves then go dancing.
Poor Hearing/Buzzing in Ears
Put a bee in each ear and then put a plug in each one so that the bee stays put...bzzz
Balance and Walking Problems
Drink 100 proof grain alcohol and then sit and spin in an office chair for 30 minutes, now get up and see what happens.
Urgently Needing to Pee
We put a .5 liter remote controlled water bag and drip tube in your pants, we point out 2 restrooms in a crowded mall, then we tell you that you have 30 seconds before we activate the water bag (by remote control) to get to a restroom. Just for spite we may make that 20 seconds without telling you.
Bizarre and Inexplicable Sensations
Place tiny spiders on your legs or arms and allow them to periodically crawl around throughout the day, heck all day would be good too.
Pins and Needles
Stab yourself repeatedly with needles all over your body or better yet....Get a very large tattoo in your most sensitive area.
Dizziness (Vertigo)
Get on a gently rocking boat all day and all night and take several walks around the deck with your eyes closed.
Fatigue
Stay awake for two full days to induce incredible fatigue and then cook dinner, clean the house, walk the dog and see how you feel. Please do not compare MS fatigue to you being tired from only a few hours of sleep - it's not the same at all.
Cognitive Function (Brain Fog)
Take a liberal dose of sleeping pills but stay awake. Try and function properly and think clearly. To make it even more real without killing yourself of course, take the sleeping pills with a small sip of wine.
Bowel Problems
Take a 4 day dose of an anti-diarrhea medicine followed directly by a 3 day dose of stool softeners for a minimum of 3 weeks, at the end of 3 weeks sit down on a hard un-cushioned chair and stay there till tears appeare.
Burning Feeling
Make a full pot of boiling water and then have someone fill a squirt gun with the boiling water and shoot it at yourself all day long. However, you can give us the pleasure of shooting you instead...optional of course.
Intention Tremor
Hook your body to some type of vibrating machine try and move your legs and arms.....hmmm are you feeling a little shaky? You are not allowed to use anything fun for this lesson.
Buzzing Feeling When Bending Our Heads to Our Chest (L'Hermitte's)
Place an electrical wire on your back and run it all the way down to your feet, then pour water on it and plug it in.
Vision Problems (Optic Neuritis)
Smear Vaseline on glasses and then wear them to read the newspaper.
Memory Issues
Have someone make a list of items to shop for and when you come back that person adds two things to the list and then they ask why you didn't get them. When you come back from shopping again they take the list and erase three things and ask why you bought those things.
Foot Drop
Wear one swim fin and take about a 1/2 mile walk, nothing else needs to be said for this one, you'll get it.
Fear
Dream that you have lost complete feeling in your feet and when you wake up wiggle your feet, just so happens they don't move. Think about this every night wondering whether something on your body won't work the next day when you wake up.
Swallowing
Try swallowing the hottest chili pepper you can find.
Heat Intolerance or Feeling Hot When it's Really Not
You are on a nice vacation to Alaska. It's 35° outside and 65° inside. Light a fire for the fireplace and then get into it. Once you have reached about 110° tell me how you feel, even a person without MS would feel bad, now add all of the above symptoms - welcome to our world.
___________________________________
A Silent Epidemic
Autoimmune diseases (AI) cause significant and chronic morbidity and disability. Consider this quote in the publication, The Scientist (Volume 17, Issue 9, Page 30, and Date: 5/5/2003). "These disorders affect an estimated 5% to 8% of the US population (or currently, 16 to 27 million people)." Thousands of people are newly diagnosed every month. The loss in productivity to our nation's economy (not to mention the loss of income to families) due to disabilities associated with these diseases is almost incalculable. There is currently no cure for these diseases.
The generally accepted standard of care (immune-modulation treatments) do not halt the disease progression. Most treatments are strictly for symptomatic relief, or an attempt to slow the progression. To complicate matters, those with one of these diseases have varying rates of progression. Some people are relatively asymptomatic throughout their lifetimes, while others suffer rapid symptomatic progression (like an Open-ended Bell Curve). Most people with these diseases gradually become more symptomatic, progressing towards greater pain, suffering and disability.
In many of these autoimmune diseases, halting further progression will literally save their lives. The improvements in the Quality of Life for all patients offer hope for a brighter, more productive future. With an impressive success rate, these HSCT procedures are the only truly viable options currently available for many thousands of people with autoimmune diseases.
The Immune Renewal Foundation embraces medical processes that are patient centric; that are not Drug-Centered. Procedures that utilize established, yet refined, medical technologies to Reboot the Immune System; thus halting further progression of autoimmune diseases. These procedures are called "Autologous Haematopoietic Stem Cell Transplant with High-dose chemotherapy, aka HSCT".
As of 2013, these procedures have rarely been employed for the treatment of autoimmune diseases. Yet the efficacy of these procedures have been proven in Clinical Trials. For whatever reason, these procedures are not widely known in the medical community for the treatment of autoimmune diseases. Only a very small fraction of sufferers know that these "Procedures" exist or that they might be a treatment option. The Immune Renewal Foundation's Mission is to spread awareness of the existence of these HSCT procedures to as many sufferers of autoimmune diseases as possible.
Organizer
DeAnna Lopes
Organizer
Gardnerville Ranchos, NV
