This church has graciously offered to match the donations that have been made since February 1st through February 16th up to a total of $2000. As of right now $530 has been donated to Jillian’s Gofundme account since this challenge has started.
Please get the word out and keep sharing this information to help raise money for Jillian’s mommy and daddy to use for travel, hotel and food expenses they will have for making this trip to Boston Children’s Hospital. Thank you everyone for all your love and support for our precious Jillian!! ❤️
"Bless her Heart"
Jillian was born 5-10-17.
She is the daughter of
Mikey Harlow & Deanna Harlow
Bryson & Cayson
Connie Biehl Ritchie & Len Ritchie
Mike Harlow, Sr.
Robert Tornes & Lisa Hardbarger
She has a congenital heart defect HLHS (Hypoplastic Left Heart Syndrome-known as half a heart), aorta stenosis, and Mitral stenosis. She has had the Hybrid stage 1 heart surgery on 5-15-17. She had a balloon atria septostomy and a PDA stent placed on 5-24-17. She had an atria septum stent placed on 7-7-17. She is 9 weeks old and she has spent 6.5 of those weeks in Nationwide Children's hospital. She will be having the Glenn this fall. The Glenn is an open heart surgery. She will go on the lung and heart bypass machine for this surgery. Then she will have the Fontan operation between the ages of 2-4. This is the final stage of her heart reconstruction. She will again be put on the heart and lung bypass machine. Once she finishes the Fontan she will be placed on the heart transplant list.
Along with her heart issues, she now has hydrocephalus so she will be following up with neurosurgery and will more than likely need stents put into her brain. Mikey said after talking with a friend that has a son that has hydrocephalus she said Jilllian's vomiting is likely being caused by this. It's her body's way of telling her she has pressure building up in her brain.
She's currently on 7 medications including a blood thinner shot given every 12 hours for a clot in her leg from the last heart cath.
You can follow Jillians Journey at the link below:
- STACY ORR
- Melanie Schneider
- Suzanne Simmons Hulka
- Lyndsey Kuhn
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