Jeslyn was diagnosed with neurofibromatosis (NF) at only 10 months old. NF is a genetic disorder that affects 1 in 3,000 people and causes tumors to grow ANYWHERE in the body along the nervous system. It is unpredictable and there is no cure.
Since her diagnosis she has undergone general anesthesia 6 times for 4 MRIs and 2 surgeries, with several more planned. In December 2013, a tumor was found on sweet baby Jes' optic nerve. The doctors recommended MRI surveillance since her type of tumor is usually slow growing. However, hers grew significantly more than anticipated...50% growth in less than 6 months, showing invasion onto both optic nerves and possible growth into her hypothalamus. In hopes to preserve her vision and prevent other serious issues related to the tumor growth, Jeslyn had mediport placement surgery and began her chemotherapy regimen days after celebrating her 3rd birthday. She will undergo Chemo EVERY week for the next 15 months to hopefully stop the growth of the tumor.
While the focus today is on fighting this tumor and saving her sight, NF is a lifelong disease with no cure at this time. There is no way to predict the extent of disease or tumors that Jeslyn with have or how severely she will be affected.
An account has been set up for Jeslyn and all monies will go towards paying for doctor bills and to help the family with any other expenses that we do not forsee.
More pictures and information will be updated soon to keep you posted on how things are going! Thank you so much for your support it means a great deal to us all!!!
For more information on Neurofibromatosis check out
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