HELP BEN FIGHT GUILLAIN BARRE

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2904763_1419809[phone redacted]_funddescription.

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Benjamin was a normal active loving 6 year old until the beginning of December. He was complaining his legs hurt so he was taken to the hospital where his parents were told that nothing was wrong with him. The next day he couldn't walk so back to the hospital he went again being told nothing was wrong but his parents wouldn't leave until he was seen by another doctor since clearly something was wrong. Ben and his parents were transferred to a Children's Hospital in Philadelphia,PA where after numerous tests and Ben losing sensation in his hands and arms he was diagnosed with Guillain Barre Syndrome, a rare disorder that attacks the nervous system. He went into respiratory failure soon after and was placed on a ventilator,incubated,and sedated.  Through further testing the doctors at the Children's Hospital also diagnosed Benjamin with another rare disorder called Myocarditis which damages the heart wall. The doctors have informed his parents that he does have heart damage but to what extreme we do not know at this current time.  Benjamin is stable at this time but has a long road ahead of him.  He has already received a blood transfusion and due to this long period of ventilation they may have to insert a trach. Once Benjamin has become stable and can be woken and unhooked from all the medical things Ben will have months of rehabilitation to go through along with medication that he will have to take on the regular. Through this all his parents have been by his bedside both needing to leave their jobs that are 90 minutes away from the hospital to be at their son's bedside as he must be constantly watched.
         We are seeking donations to aide in Ben's recovery and to get him the best possible treatment available Once Ben is released from the hospital and any rehab than may occur the remaining balance will be placed in a CD where it will be kept to insure if any other medical situations occur that money will be there to cover such costs.Any help will be appreciated and we thank everybody in advance. Ben is a fighter and has been since day one. All of your support will be shared with Ben on his quest to get better. Thank you again!!!

http://www.mayoclinic.org/diseases-conditions/guillain-barre-syndrome/basics/definition/CON-20025832

http://www.mayoclinic.org/diseases-conditions/myocarditis/basics/definition/con-20027303

Donations

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  • Anonymous 
    • $70 
    • 75 mos
  • Anonymous 
    • $30 
    • 75 mos
  • Kostas Hatalis 
    • $56 
    • 75 mos
  • Stephanie Travers 
    • $50 
    • 75 mos
  • Kelly Williamson 
    • $50 
    • 75 mos
See all

Organizer

Melissa Glen 
Organizer
Phillipsburg, NJ
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