Jason's Fight with SMA
Donativo protegido
3 month old Jason was diagnosed with Type 1 SMA on November 6th. SMA is a genetic disorder that affects the central nervous system, peripheral nervous system, and skeletal muscles. If left untreated SMA can be fatal for babies. Luckily there are treatment options and gene therapy available with today's current medical technology.
We are currently waiting for insurance approval for a medication called Zolgensma which is incredibly expensive. Aside from that we are still navigating specialists and doctor appointments as well as trying to keep bills paid and our other 4 kids cared for while this journey has plans to take us all over our state. There is also talk of us being sent to Seattle where more specialists are available.
We have a long road ahead of us and are asking for help, times are hard but we are so grateful for any hand that is reached to us.
Thank you from the bottom of our hearts
We are currently waiting for insurance approval for a medication called Zolgensma which is incredibly expensive. Aside from that we are still navigating specialists and doctor appointments as well as trying to keep bills paid and our other 4 kids cared for while this journey has plans to take us all over our state. There is also talk of us being sent to Seattle where more specialists are available.
We have a long road ahead of us and are asking for help, times are hard but we are so grateful for any hand that is reached to us.
Thank you from the bottom of our hearts
Organizador
Gabrielle Preuss
Organizador
Shelby, MT
