As you can imagine such a diagnosis was devastating for Janek and our family. Despite this we refuse to give up, searching for research and treatments that might help. Janek is trying to fight his muscles weakness, coordination problems, difficulties with walking, swallowing and permanent tiredness on a daily basis. Facing this lack of control in his own body every day is very hard, both physically and mentally. Watching how my Janek is losing his independence is heart breaking. How things he loved to do like cycling, travelling or just simply playing ball with our 6 years old daughter are becoming increasingly difficult and some now, impossible for him.
Recently we found out about the electromagnetic device called Salus Talent, which is successfully used in all neurological, degenerative diseases, also in cases of SCA.
By stimulating nerves, muscles and blood vessels this device is helping with circulation and regeneration of cells. Treatment like this along with physiotherapy could help with Janek’s symptoms or even slow down progression of his disease.
Unfortunately in Ireland this treatment isn’t available. It is a very safe and easy form of physiotherapy which could be applied at home however it is also very expensive. This fund has been set up to help us to raise money, which along with our savings will cover a cost of buying the Salus Talent so that Janek might have a chance to get this treatment.
This is the best hope and only hope we have to improve quality of Janek’s life and our family life.
Thank you all so much for reading, sharing and if you are able at all, donating.
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