JalOsTRONG – Be Relentless - If you have landed on this page you have undoubtedly heard that Mark was recently diagnosed with ALS -otherwise known as Lou Gehrig’s disease. After 9 months of Dr. Appointments and seeking treatment at 9 different hospitals, he was finally diagnosed in June at the MAYO CLINIC on their 2nd visit there. While Mark is in early stages of the disease, it is progressive and incurable. In most people it begins with a “dropped foot or lazy limb” – Mark’s began in his throat and he has difficulty communicating and swallowing. As it progresses, it will become increasingly difficult for Mark to perform everyday tasks and he will require additional care and assistance. He has had to “retire” as he can no longer do the repetitive work that his job required.
Until this past May there had not been any new medication advances for over 22 years in ALS. This is longer than any of his children have been alive. A new IV infusion drug was released in the US in mid-August and Tracey continues to seek insurance authorization and medical approval as the costs are extensive. At this time, there is no guarantee that the insurance company will even cover the medication.
As you can imagine this has been very devastating for Tracey and their 3 sons (Thomas, Trevor and Trent). Statistics show that most people diagnosed with ALS only survive 2-5 years. The costs and assisted care that will be needed is overwhelming.
They know that they have great support from their families and friends and are extremely humbled by all of the people asking how they can help. We invite you to support Mark and his family however you are able. This is a road that has no storybook ending and no one would ever choose to follow, but their faith and spirits are not broken. They will persevere-JalOsTRONG