Hello Everyone I'm someone who just got to know this amazing lady called Jade Lynch - a scared lady who has just being told that 'WE’RE EXPECTING YOU TO DIE'.















Jade has Ehlers-Danlos Syndrome  (EDS), Gastroparesis, Svt , Postural Orthostatic Tachycardia Syndrome(PoTs) and much more. 

In Jade's words- 








A Rare Disease- Having any Disease is horrible but having one that most doctors don’t know of is even worse, Takes years for a diagnosis and even after that NO Doctor in Ireland understands it or knows how to treat it we don’t have a specialist. It’s scary because dying scares me and I know that everytime I get rushed to hospital could be my last. We need a plan we need treatment that works. 















I know my health isn’t getting better it’s getting worse. I’m in hospital every week to make sure my bloods are ok and most the time they’re not and I get admitted. As my family say “That I’m Fading away”. Im afraid to sleep incase I never wake up. 








This journey isn’t getting easier and the more doctors involved the harder it’s getting because they’re not communicating.I just wanna live abit of normality where I can travel with friends or just eat abit of food and not feel or be sick. 















All this is caused by Ehlers Danlos syndrome: 















 








Ehlers-Danlos syndrome (EDS) is a disease that weakens the connective tissues of your body. These are things like tendons and ligaments that hold parts of your body together. EDS can make your joints loose and your skin thin and easily bruised. It also can weaken blood vessels and organs.















 








Gastroparesis is a disease of the muscles of the stomach or the nerves controlling the muscles that causes the muscles to stop working.















Gastroparesis results in inadequate grinding of food by the stomach, and poor emptying of food from the stomach into the intestine.















The primary symptoms of gastroparesis are nausea, vomiting, and abdominal pain.















 








Jade who lives near Westport, Co. Mayo Ireland needs to get abroad to see a specialist for her condition to see if anything can be done to extend her life expectancy. Expenses through this all have been so much already. This has taking such a toll on her life. Jade so desperately wants to live but she needs our help in kindness, by donating whatever we can. 















  Speaking to Jade, hearing her story and seeing how she has helped so many diagnosed with the same thing. She is a lady that puts everyone before herself. Now it's time we put her type of people before us.















Follow her on facebook and Instagram : Jade's crazy Journey. 















 








Thank you.

Zbigniew Pianka

Breeda Cremins

Joan o'gorman

Maura Maguire

Martin McDonnell

Anonymous

Timothy McIntyre

Sharon Best

patrick mc geehan

Donna McNally

Jade Lynch will die without your kind contribution

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Jade Lynch will die without your kind contribution

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