Ivyanna Twyford

28493108_15214359260_r.jpeg28493108_15214354380_r.jpeg28493108_15214354640_r.jpeg28493108_15214354960_r.jpeg28493108_15214355630_r.jpeg28493108_15214355940_r.jpeg28493108_15214357300_r.jpegIvyanna Louise twyford
The most amazing bubbly beautiful happy girl has had a rough life from the start;
since pregnancy she was born with three massivly rare conditions who make her the little girl she is today but those rare conditions come with a cost, the one rare medical condition that has effected her the most is called a giant congenital melonacyitc Nevis ( birthmark ) babies that are born with this may or may not have birthmarks on the brain but in her case she was born with them on her brain, about two months ago she started having seizures so we went for an MRI and recently found out she has a tumor on her brain and her amazing Dr Alvaro (cancer oncology) had informed us that her birthmark on her brain is melanoma( cancerous) and has given us a time frame of 4 months, being a 17 year old mum has been hard being unable to work and not receive the family support I want because both my mum and my MIL Have to work and cannot take time off because of bills, we are all deeply heart broken because we have to work to survive but we also do not want to go to work but to spend time with Ivyanna in her last months and make it the best but short of funds, anyone who knows her she’s the most happiest most chilled out, placid baby you’ll ever meet. She’s been through 8 major operations since birth and she comes out of everyone happy as anything and she takes recovery like a champion, nothing can bring her down so it’s only fair someone that strong gets to have a happy life. We are praying we get more time then 4 months but that is all we have got given and we are heartbroken such a beauiftul kind hearted amazing happy baby has to go through this and she won’t even know what’s going on
any donation is helpful as our goal is to make
ivyanna as distracted as possible from the pain she is going to feel once she gets worse
  • Hollie Wright 
    • $20 
    • 43 mos
  • Jonathan sheen 
    • $10 
    • 43 mos
  • Mathew Sharpe 
    • $50 
    • 43 mos
  • Hayley Anderson 
    • $20 
    • 43 mos
  • Bec Ryan 
    • $100 
    • 43 mos
See all


Analysse Hoenstok 
Blue Haven NSW
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