<div>This is a new updated Go fund me as the last one was started 6.5 years ago, the funds from the last few weeks will be put towards Brineura doses and Charleigh's on going care.
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<div>So there is no confusion on the current actual total.
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<div>We didnt want their to be any confusion moving forward,
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<div>This GoFundMe has been created to cover the cost of Charleigh’s biweekly treatments that she desperately needs to keep her alive and have quality of life- Your donation will go directly towards giving Charleigh a fighting chance, paying for Brineura infusions and end of life care in the future.
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<div>Please donate, share, and help us fight for Charleigh’s future.
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<div>Charleigh Pollock is a brave, vibrant and loving 10-year-old girl from Langford, B.C., living with CLN2 Batten disease, a rare, degenerative neurological disorder. She is the only current cln2 diagnosis in all of British Columbia. The only available treatment, Brineura, immensely slows the progression of this fatal disease, keeps her seizure free and full of joy .
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<div>It’s not a cure, but it is giving Charleigh more time, more stability, quality of life and more memories with the people who love her.
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<div>Despite clear medical need and overwhelming support from global Batten Disease experts and Charleigh's own medical team the B.C. government has made the devastating decision to stop funding Charleigh’s expensive Brineura treatments.
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<div>Without this medication, needing to be administered every two weeks, her condition will rapidly deteriorate. This decision has left our family in an unimaginable position, forced to find alternative means to fund Charleigh’s ongoing treatments.
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<div>Leading experts have spoken out in support of Charleigh and warns that removing treatment is “akin to a controlled euthanasia”- and without it, Charleigh faces “a horrific death.”
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<div>We are beyond grateful for everyone's love and support during this devastating time.
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<div>~ Charleigh's loving family
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Anonymous

Judy Harris

Jon Montgomery

Susan Handlen

Don and Katie  Ekroth

Lilly Baeva

Ron Perkin

Samaya de Laat

Alana Marshall

Nadine Emond

I STAND WITH CHARLEIGH

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

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3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

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npoProfileOptIn

fundIsLinkedWithMeta

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fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

I STAND WITH CHARLEIGH

Still $5,521 to go. Help us build momentum.