Isla's Story
Donation protected
Isla-Rose Simmons. 9months old.
Isla-Rose has recently been diagnosed with Dravet Syndrome. Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.
January 2015- The month Islas condition was confirmed upon genetic testing. Isla has suffered numerous prolonged status epilepticus seizures, A seizure in which we hope with all our might she pulls through and with every seizure brings a great risk of complications. Isla is currently in ICU at Kings College Hospital London, her 2nd stay in ICU in just a few months of the seizures occuring as well as numerous hospital stays at William Harvey Hospital Ashford.
Complications Isla has had to face so far in her little 9months of life is losing the ability to breath independantly during prolonged seizures. Her stay in ICU currently is by far the worst. After being admitted to our local hospital she was then transferred to Kings College due to the loss of function of one of her lungs. Whilst in ICU she developed another life threatening seizure which lasted 1hour 25 minutes. The Doctors started her on a drug specifically for Dravet Syndrome and her condition seems to have declined. Isla is now fighting the poor function of her liver, as well as the left side of her body being in a paralyzed state, this may be damage caused by the seizures, and a fact we are all aware may happen.
We do not know what the future holds for Isla, her quality of life is uncertain, but what we do know is that she needs the love and support from her family. Unfortunatley financially this can not be the case. Isla's daddy is self employed and is struggling to keep as a family unit whilst Isla remains in a critical condition.
So basically we want to raise donations for Isla and her parents to take the financial stress away who needs that stress when all your efforts are on your beautiful baby surviving the day?
Isla-Rose has recently been diagnosed with Dravet Syndrome. Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.
January 2015- The month Islas condition was confirmed upon genetic testing. Isla has suffered numerous prolonged status epilepticus seizures, A seizure in which we hope with all our might she pulls through and with every seizure brings a great risk of complications. Isla is currently in ICU at Kings College Hospital London, her 2nd stay in ICU in just a few months of the seizures occuring as well as numerous hospital stays at William Harvey Hospital Ashford.
Complications Isla has had to face so far in her little 9months of life is losing the ability to breath independantly during prolonged seizures. Her stay in ICU currently is by far the worst. After being admitted to our local hospital she was then transferred to Kings College due to the loss of function of one of her lungs. Whilst in ICU she developed another life threatening seizure which lasted 1hour 25 minutes. The Doctors started her on a drug specifically for Dravet Syndrome and her condition seems to have declined. Isla is now fighting the poor function of her liver, as well as the left side of her body being in a paralyzed state, this may be damage caused by the seizures, and a fact we are all aware may happen.
We do not know what the future holds for Isla, her quality of life is uncertain, but what we do know is that she needs the love and support from her family. Unfortunatley financially this can not be the case. Isla's daddy is self employed and is struggling to keep as a family unit whilst Isla remains in a critical condition.
So basically we want to raise donations for Isla and her parents to take the financial stress away who needs that stress when all your efforts are on your beautiful baby surviving the day?
Organizer
Victoria Louise Richardson
Organizer
