Isaacs private medical treatment

Hi this is isaac he is three years old and has a rare gene mutation med12 which has caused severe refractory epilepsy which medication hasn't been able to stop and unfortunately there are no other options for him on the nhs, we have been left with no choice but to go private in the hope that it can help him, the treatment we need for him comes at a price and we are hoping to fundraise enough to get him as much help as we can.

 

Isaac needs the help now and unfortunately what he needs the UK doesn't provide freely, there is a lot of politics around childhood epilepsy treatments but the treatments have changed and saved lives which there is living breathing proof but no one willing to listen to stand up and fight for our children due to stigma and fear.

 

There is one paediatric doctor in the whole of the UK willing to provide this treatment and so many children desperate to be seen we were told they would be opening their books in April but unfortunately they are still not allowed to see any other patients so we have no choice but to seek treatment abroad we are hoping to travel to Holland and access treatment there which we is why we need to fundraise whilst also campaigning for change in the UK if everyone could sign and share our petition we would massively appreciate it.

https://www.change.org/Cruellydeniedaccess

Thank you for your support

 

Sarah