LINCOLN'S STORY AS TOLD BY HIS MOM, LINDY:
When he was 8 months old, Lincoln was diagnosed with Severe Hemophilia B after 3 months of testing brought on by unexplainable bruising on his little body.
Hemophilia B is a rare bleeding disorder that affects only 4,000 males in the entire country, and while this is a genetic disease ... there is no history of it in our family and it was only through his diagnosis that we discovered that I am a carrier of the gene.
In the 2+ years since his diagnosis, we've seen the inside of the more hospital & ER rooms than we ever imagined we'd see in his lifetime, learned terms we'd never heard before, how to manage conditions we didn't know existed, and have held our breath more times than we can count as we find the balance between our desire to protect and his desire to be a growing boy!
We have also encountered tremendous obstacles. In October 2017, Lincoln had an anaphylactic reaction to infusion which sent us to the ER and led to the discovery of an inhibitor in his body - making his case even rarer. In fact, this places him among one of only 99 people in the entire country! The existence of the inhibitor complicates his treatment because it means that his body is rejecting the medication he needs to stay safe. As a result, he has been on a temporary medication for the last 6 months and we have encountered numerous challenges as a result - challenges that through March had placed us in the hospital for a minimum of 2 days at a time every month since October.
At the end of April, we will have an extended (estimated 11 days) stay at the children's hospital to perform a treatment that should address his inhibitor and make it possible for us to get him back on the medication he needs! We ask for your prayers over this treatment and all those involved in his care.
To say that this journey has been more than we ever expected would be an understatement. It's been hard, and exhausting, and expensive, and quite heartbreaking at times. Yet, through it all, we see God's hand in our boy's life and his grace covering us as we navigate this disease and each challenge we face. There is no doubt in our minds that while this may be the result of a "random gene mutation" there is actually nothing random about how God made him or the fact that He chose Lincoln and gave him an undeniable spirit and strength to not only survive this condition but to THRIVE through it and bring glory to God as he does.
THANK YOU for any gift of support that you make on his behalf. Your contribution will go toward our medical costs for treatment and hospital stays + travel to and from the treatment center and hospital, and cost-of-living expenses that have been tremendously impacted by his care needs and our time away from home.
We are so appreciative of all the love and support we receive and know that our friends and family are storming the heavens on behalf of our boy. Your prayers are felt and are so powerful!
With love and gratitude,
Ben, Lindy, & Lincoln Gault