Cami's Healthy Living Fund

Meet Cami! This beautiful 16 year old girl will love you the moment she meets you, but she is living with a rare neurological disorder called Prader-Willi Syndrome  (PWS), that is more complicated than any math problem you will ever encounter. She is the daughter of my brother and sister-in-law, Larry and Kim Grundy, and for the past 16 years they have been devoted to giving Cami the best possible care. 

PWS is caused by the absence of a piece of genetic material in the 15th chromosome, and currently there is no cure. 

PWS affects the hypothalamus region of the brain which is responsible for appetite, growth, temperature regulation, and metabolic rate thus causing a person with PWS to have uncontrollable hunger, low muscle tone, high risk for obesity, short stature and higher than normal body temperatures. Cami experiences all of these and preventative action is taken daily to help Cami deal with these many issues.

After attending the Children's Institute in Pittsburgh, PA, Cami and her parents found a new way of life through healthy eating and exercise.  Larry says that, "Cami's stay at the Children's Institute was a game changer for her and our family."

Her new diet and exercise plan helps Cami physically and emotionally, but Cami's new grocery bill is an additional $7,000 a year. This cost is a struggle for Larry and Kim, but  they are commited to continuing this healthy eating plan because of the tremendous benefits for Cami.


Will you help? 

Donate now!
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    • $20 
    • 54 mos
  • Nicki Lawrence 
    • $100 
    • 75 mos
  • Harvey Daly 
    • $100 
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  • Casey Gensler 
    • $20 
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  • The Romero Family 
    • $5 
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Eric Briarley Grundy 
Astoria, NY
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